Evidence map›Paper›PMID 39809249›Full record

ArticleRespiration; international review of thoracic diseases2025

National Registry for Home Mechanical Ventilation in Children from Turkey.

Neval Metin Çakar, Merve Selçuk Balcı, Azer Kılıç Başkan, Hüseyin Arslan, Füsun Ünal, Yeliz Koç, Gözde Cavıldak Karaaslan, Sümeyye Sinan, Fatih Ercan, Gökçen Ünal and 49 more

Erratum issuedAbstract readMulticenter Study
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In one paragraph

Article in Respiration; international review of thoracic diseases, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

59 authors.

Neval Metin ÇakarDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.
Merve Selçuk BalcıDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.
Azer Kılıç BaşkanDivision of Pediatric Pulmonology, Department of Pediatrics, Cerrahpaşa Faculty of Medicine, Istanbul University-Cerrahpaşa, Istanbul, Turkey.
Hüseyin ArslanDivision of Pediatric Pulmonology, Department of Pediatrics, Cerrahpaşa Faculty of Medicine, Istanbul University-Cerrahpaşa, Istanbul, Turkey.
Füsun ÜnalDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Yeliz KoçDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Gözde Cavıldak KaraaslanDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Sümeyye SinanDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Fatih ErcanDivision of Pediatric Pulmonology, Department of Pediatrics, Meram Faculty of Medicine, Necmettin Erbakan University, Konya, Turkey.
Gökçen ÜnalDivision of Pediatric Pulmonology, Department of Pediatrics, Meram Faculty of Medicine, Necmettin Erbakan University, Konya, Turkey.
Hanife Tuğçe ÇağlarDivision of Pediatric Pulmonology, Department of Pediatrics, Meram Faculty of Medicine, Necmettin Erbakan University, Konya, Turkey.
Zeynep Efşan BaşerDepartment of Pediatrics, Bezmialem Vakif University, Istanbul, Turkey.
Harun MamaçDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Gazi University, Ankara, Turkey.
Sinem Can OksayDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Istanbul Medeniyet University, Istanbul, Turkey.
Zeynep Reyhan OnayDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Istanbul Medeniyet University, Istanbul, Turkey.
Raziye AtanDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Birce SunmanDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Havva İpek DemirDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Ece HalisDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Ege University, Izmir, Turkey.
Bahar Girgin DindarDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Ege University, Izmir, Turkey.
Secahattin BayavDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Ankara University, Ankara, Turkey.
Suat SavaşDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Dicle University, Diyarbakır, Turkey.
Merve KorkmazDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Uludağ University, Bursa, Turkey.
Ebru KöstereliDivision of Pediatric Pulmonology, Koç University Hospital, Istanbul, Turkey.
Selçuk UzunerDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Hakan YazanDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Ali ÖzdemirMersin City Hospital, Mersin, Turkey.
Abdurrahman E BaşaranDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Akdeniz University, Antalya, Turkey.
Gökçen Kartal OzturkDivision of Pediatric Pulmonology, Dr. Behçet Uz Children's Hospital, Izmir, Turkey.
Ali ErsoyDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Erciyes University, Kayseri, Turkey.
Beste ÖzsezenŞanlıurfa Training and Research Hospital, Şanlıurfa, Turkey.
Ayşen BaşaranAntalya Training and Research Hospital, Antalya, Turkey.
Özlem KeskinDivision of Pediatric Immunology and Allergy, Department of Pediatrics, Faculty of Medicine, Gaziantep University, Gaziantep, Turkey.
Tuğba Ramaslı GürsoyVan Training and Research Hospital, Van, Turkey.
Mina HızalAnkara Training and Research Hospital, Ankara, Turkey.
Gizem ÖzcanKayseri City Hospital, Kayseri, Turkey.
Pinar ErgenekonDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.
Ayşe A Kılınc SakallıDivision of Pediatric Pulmonology, Department of Pediatrics, Cerrahpaşa Faculty of Medicine, Istanbul University-Cerrahpaşa, Istanbul, Turkey.
Fazilet KarakocDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.
Bülent KaradağDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.
Haluk ÇokuğraşDivision of Pediatric Pulmonology, Department of Pediatrics, Cerrahpaşa Faculty of Medicine, Istanbul University-Cerrahpaşa, Istanbul, Turkey.
Sevgi PekcanDivision of Pediatric Pulmonology, Department of Pediatrics, Meram Faculty of Medicine, Necmettin Erbakan University, Konya, Turkey.
Tuğba Şişmanlar EyüboğluDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Gazi University, Ankara, Turkey.
Ayse Tana AslanDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Gazi University, Ankara, Turkey.
Saniye GiritDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Istanbul Medeniyet University, Istanbul, Turkey.
Figen GülenDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Ege University, Izmir, Turkey.
Nazan ÇobanoğluDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Ankara University, Ankara, Turkey.
Velat ŞenDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Dicle University, Diyarbakır, Turkey.
Yakup CanıtezDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Uludağ University, Bursa, Turkey.
Zeynep Seda UyanDivision of Pediatric Pulmonology, Koç University Hospital, Istanbul, Turkey.
Erkan ÇakırDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Istinye University, Istanbul, Turkey.
Pınar AyDepartment of Public Health, School of Medicine, Marmara University, Istanbul, Turkey.
Nilay Baş İkizoğluDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Istanbul University, Istanbul, Turkey.
Melih HangülDivision of Pediatric Pulmonology, Gaziantep Cengiz Gökçek Maternity and Children's Hospital, Gaziantep, Turkey.
Güzin CinelAnkara Bilkent City Hospital, Ankara, Turkey.
Nagehan EmiralioğluDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Ela Erdem EralpDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.
Sedat ÖktemDivision of Pediatric Pulmonology, Department of Pediatrics, Istanbul Medipol University, Istanbul, Turkey.
Yasemin GökdemirDivision of Pediatric Pulmonology, Department of Pediatrics, Faculty of Medicine, Marmara University, Istanbul, Turkey.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAdvances in neonatal and pediatric intensive care have improved patient survival rates, emphasizing the need for respiratory support in cases of chronic respiratory failure, resulting in the establishment of the Turkish National Pediatric Patients Receiving Home Mechanical Ventilation (HMV) Support Registration System in 2023. This study aims to present the initial findings of the registry.

methodsIn this cross-sectional study, epidemiological and demographic data were obtained from the registry and compared between invasive ventilation (IV) and non-IV (NIV) groups.

resultsThe study included 952 patients registered from 23 centers with a median (interquartile range) age of 6.0 (3.0-12.0) years. IV support was observed in 51.1% of patients (n = 486). There was no difference in sex between IV and NIV groups, but a significant difference in age, nutrition, mobility status, and education were observed between the subgroups. The largest patient group had neuromuscular disease, with spinal muscular atrophy being the most common primary diagnosis (15.7%). Most of the caregivers (78.7% in the NIV group and 93.8% in the IV group) received formal training before the initiation of HMV.

conclusionTurkey's first registry for pediatric HMV patients is introduced. This system helps understand and solve mobility and education issues for these patients in our country. Collaboration with relevant ministries is crucial. In addition, although most of the caregivers have received training before discharge, efforts are still needed to ensure that this rate is 100%. The long-term results will be presented in the future.

Indexed as

Home Care ServicesRegistriesRespiration, ArtificialRespiratory InsufficiencyChildChild, PreschoolCross-Sectional StudiesFemaleHumansMaleNeuromuscular DiseasesNoninvasive VentilationTurkeyHome mechanical ventilationInvasive ventilationNational pediatric home ventilation registry systemNoninvasive ventilation

Identifiers

PMID39809249
PMCPMC12718093

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