Evidence map›Paper›PMID 39808130›Full record

ReviewPediatrics2025

Home Health Care Research for Children With Disability and Medical Complexity.

Carolyn Foster, Elaine Lin, James A Feinstein, Rebecca Seltzer, Robert J Graham, Cara Coleman, Erin Ward, Ryan J Coller, Sarah Sobotka, Jay G Berry

Abstract readReview
In one paragraph

Review in Pediatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Carolyn FosterDivision of Advanced General Pediatrics and Primary Care, Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, Illinois.
Elaine LinComplex Care, Division of General Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts.
James A FeinsteinAdult and Child Center for Outcomes Research & Delivery Science, University of Colorado, Children's Hospital Colorado, Aurora, Colorado.
Rebecca SeltzerDivision of General Pediatrics, Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland.
Robert J GrahamDivision of Critical Care Medicine, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts.
Cara ColemanBluebird Consulting, LLC, Lorton, Virginia.
Erin WardMTM-CNM Family Connection, Methuen, Massachusetts.
Ryan J CollerUniversity of Wisconsin School of Medicine and Public Health, Madison, Wisconsin.
Sarah SobotkaSection of Developmental and Behavioral Pediatrics, Department of Pediatrics, The University of Chicago, Chicago, Illinois.
Jay G BerryComplex Care, Division of General Pediatrics, Boston Children's Hospital, Harvard Medical School, Boston, Massachusetts.

Funding

HOMeVent4Kids: Home-based Optimization of Mechanical Ventilation for ChildrenK23HL149829 · NHLBI · LURIE CHILDREN'S HOSPITAL OF CHICAGO · PI FOSTER, CAROLYN C. · 2020 to 2024
$775k
RE-PACT: Respiratory Exacerbation Plans for Action and Care Transitions for Children with Severe CPR34HL153570 · NHLBI · UNIVERSITY OF WISCONSIN-MADISON · PI COLLER, RYAN J · 2021 to 2023
$727k
AHRQ HHS R01 HS028979AHRQ HHS R18 HS028409NHLBI NIH HHS K23 HL149829NHLBI NIH HHS R34 HL153570
6 · The paper itself

Abstract

Pediatric home health care represents a vital system of care for children with disability and medical complexity, encompassing services provided by family caregivers and nonfamily home health care providers and the use of durable medical equipment and supplies. Home health care is medically necessary for the physiologic health of children with disability and medical complexity and for their participation and function within home, school, and community settings. While the study of pediatric home health care in the United States has increased in the last decade, its research remains primarily methodologically limited to observational studies. Dedicated funding and research efforts are needed to transform American home health care research to address multifaceted outcomes valued by families and providers as well as payers and government programs. In this paper, we review the recent literature in pediatric home health care and then propose an actional agenda that could address its missing evidence base. We posit that pediatricians should partner with family caregiving experts and patients to advance knowledge about child and family health outcomes, home health care use, new models of care, and optimal approaches to education and training while also considering meaningful approaches to address disparities. The creation of an American pediatric home health care data-sharing consortium, patient registry, and reproducible access and quality measures is also needed. Most importantly, efforts should center on patient- and family-centered health priorities, with the goal of ensuring equitable outcomes for every child and family.

Indexed as

Children with DisabilitiesHealth Services ResearchHome Care ServicesCaregiversChildHumansUnited States

Identifiers

PMID39808130
PMCPMC12103251

What OpenQuestion holds

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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.