Evidence map›Paper›PMID 39807488›Full record

ArticlePatient related outcome measures2025

"Time to Be Young?" - A Qualitative Study Exploring the Impact of Attending a Course for Young Carers Who Have a Parent with Dementia.

Celine Haaland-Johansen, Ingebjørg Haugen, Anne Marie Mork Rokstad

Abstract read
In one paragraph

Article in Patient related outcome measures, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Celine Haaland-JohansenNorwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.ORCID 0009-0003-4988-1363
Ingebjørg HaugenFaculty of Health Studies, VID Specialized University, Oslo, Norway.
Anne Marie Mork RokstadNorwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.ORCID 0000-0002-3713-1229

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose: Being a young carer of a parent with dementia can be challenging, with many carers undertaking various practical and caring tasks. The weekend course Time to be young? gathers young carers, aiming to support them to cope with their challenges in everyday life. The aim of this study was to explore their role as a caregiver and the experienced impact of the course on their strategies of coping in their everyday life. Participants and Methods: The study had a qualitative descriptive design inspired by Lindseth and Norberg's phenomenological hermeneutical method, using individual semi-structured interviews for data collection. The participants were recruited from former participants of the course Time to be young?, and the final sample included eight participants. Results: Through the analysis, four main themes were identified: 1) Help to accept the situation, 2) A sense of community, 3) The need for information and 4) The need to live one's own life. The study found that attendance at Time to be young? for young adults having a parent with dementia affected their coping strategies in their situation as a young care. Conclusion: The study demonstrated the importance of courses like Time to be young?, and need for a meeting place, tailored information about dementia, and an opportunity to share and reflect upon their experiences as a young carer.

Indexed as

coursedementiainformationyoung adultsyoung carers

Identifiers

PMID39807488
PMCPMC11725231

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.