Evidence map›Paper›PMID 39806875›Full record

ArticleClinical endocrinology2025

Challenges in Care Provision for Children and Adolescents With Differences of Sex Development.

Gabby Atlas, Chloe Hanna, Tiong Yang Tan, Elena Tucker, Katie Ayers, Andrew Sinclair, Michele A O'Connell

Abstract read
In one paragraph

Article in Clinical endocrinology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Gabby AtlasMurdoch Children's Research Institute, Parkville, Victoria, Australia.
Chloe HannaMurdoch Children's Research Institute, Parkville, Victoria, Australia.ORCID http://orcid.org/0000-0002-5714-2195
Tiong Yang TanMurdoch Children's Research Institute, Parkville, Victoria, Australia.
Elena TuckerMurdoch Children's Research Institute, Parkville, Victoria, Australia.
Katie AyersMurdoch Children's Research Institute, Parkville, Victoria, Australia.
Andrew SinclairMurdoch Children's Research Institute, Parkville, Victoria, Australia.
Michele A O'ConnellMurdoch Children's Research Institute, Parkville, Victoria, Australia.

Funding

This work was supported by the Melbourne Children's Postgraduate Health Research Scholarship (GA).
6 · The paper itself

Abstract

objectivesThe ideal model of care for individuals with Differences of Sex Development (DSD) continues to evolve, with multiple models proposed. This study aimed to explore current care models for individuals with DSD in Australia and New Zealand (NZ) and to identify clinician perceptions of gaps and barriers in current practice.

methodsCross-sectional anonymous online questionnaire, conducted via Research Electronic Data Capture (REDCap) software. Clinicians involved in the diagnosis and management of individuals with DSD in Australia and NZ were contacted through multimodal recruitment approaches. Themes included demographics of respondents, preferred terminology, composition of the DSD multidisciplinary team (MDT) and availability of a database.

resultsSeventy-nine eligible participants from centers in all states and territories of Australia and NZ commenced the survey with 63 complete responses. Almost One-third (31%) of participants are not currently part of a DSD MDT meeting at their center. While three quarters (76%) of respondents identified changes to DSD care over the past 5 years, three quarters (75%) also identified barriers to current care provision. Only 20% of respondents reported psychology being a current part of their MDT and 70% identified psychology as a desired but missing part of their team.

conclusionsResponses to the survey identify gaps and barriers to DSD care across Australia and NZ, particularly a lack of psychosocial supports. Current models fall short of international recommendations and services need to explore the reasons for these gaps further.

Indexed as

Disorders of Sex DevelopmentAdolescentAustraliaChildCross-Sectional StudiesFemaleHumansMaleNew ZealandSurveys and Questionnairesendocrinologymultidisciplinary teampsychologysexual development

Identifiers

PMID39806875
PMCPMC11962341

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.