Evidence map›Paper›PMID 39803723›Full record

ArticleBJOG : an international journal of obstetrics and gynaecology2025

Consensus on Symptom Selection for Endometriosis Questionnaires: A Modified e-Delphi Study.

Tong Zhu, Henrik Marschall, Karina E Hansen, Andrew W Horne, Lucky Saraswat, Krina T Zondervan, Stacey A Missmer, Lone Hummelshoj, Atilla Bokor, Camilla S Østrup and 2 more

Abstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in BJOG : an international journal of obstetrics and gynaecology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Tong ZhuDepartment of Public Health, Aarhus University, Aarhus, Denmark.
Henrik MarschallDepartment of Public Health, Aarhus University, Aarhus, Denmark.
Karina E HansenDepartment of Public Health, Aarhus University, Aarhus, Denmark.
Andrew W HorneCentre for Reproductive Health, Institute of Regeneration and Repair, University of Edinburgh, Edinburgh, UK.ORCID https://orcid.org/0000-0002-9656-493X
Lucky SaraswatAberdeen Royal Infirmary, University of Aberdeen, Aberdeen, UK.
Krina T ZondervanOxford Endometriosis CaRe Centre, Nuffield Department of Women's and Reproductive Health, University of Oxford, Oxford, UK.
Stacey A MissmerDepartment of Obstetrics Gynecology and Reproductive Biology, Michigan State University, East Lansing, Michigan, USA.
Lone HummelshojEndometriosis.org, London, UK.
Atilla BokorDepartment of Obstetrics and Gynecology, Semmelweis University, Budapest, Hungary.
Camilla S ØstrupDepartment of Public Health, Aarhus University, Aarhus, Denmark.
Anna MelgaardDepartment of Public Health, Aarhus University, Aarhus, Denmark.ORCID https://orcid.org/0009-0008-0209-1619
Dorte RytterDepartment of Public Health, Aarhus University, Aarhus, Denmark.

Funding

European Union's Horizon 2020 research and innovation program
6 · The paper itself

Abstract

objectiveTo build consensus on most important symptoms and related consequences for use in questionnaires to characterise individuals with suspected and confirmed endometriosis in the general population.

designA questionnaire of 107 symptoms and related consequences of endometriosis was collaboratively developed by patients, medical doctors and researchers and further assessed in a two-round e-Delphi study. Participants assessed the relevance of the symptoms, and a priori it was decided that 70% was the threshold for inclusion of a symptom.

settingParticipants represented 7 countries, including Australia, Denmark, France, Hungary, the United Kingdom, the United States, and Turkey. POPULATION: Individuals with endometriosis, medical doctors and researchers with expertise in endometriosis.

methodsA modified e-Delphi study.

main outcome measuresConsensus-based selection of symptoms for endometriosis questionnaires.

resultsSeventy-six participants completed the first Delphi round and 65 completed the second round. Four symptoms met consensus in the first round (menstrual pain, pain during sexual intercourse, cyclic pain during defecation, and infertility), with two additional symptoms reaching consensus in the second round (cyclic pain and increased doctor/health care contacts for abdominal/pelvic pain).

conclusionThis study highlighted six symptoms relevant for inclusion in endometriosis research questionnaires: menstrual pain, pain during sexual intercourse, cyclic pain during defecation, cyclic pain, infertility, and a high number of doctor/health care visits due to abdominal/pelvic pain. Recognising a broad range of potential symptoms is essential for raising awareness and supporting early detection efforts.

Indexed as

EndometriosisSymptom AssessmentAdultDelphi TechniqueDysmenorrheaFemaleHumansInfertility, FemaleMiddle AgedPelvic PainSurveys and QuestionnairesDelphi studyearly detectionendometriosisinfertilitymenstrual painpelvic painsymptom assessment

Identifiers

PMID39803723
PMCPMC11879915

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.