Evidence map›Paper›PMID 39801442›Full record

ArticleInternational journal of qualitative studies on health and well-being2025

Language - a vital pill missing in patients' treatment: language barriers during cancer care through the eyes of patients and families.

Lisbeth Birkelund, Karin Brochstedt Dieperink, Morten Sodemann, Johanna Falby Lindell, Karina Dahl Steffensen, Dorthe Susanne Nielsen

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Article in International journal of qualitative studies on health and well-being, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lisbeth BirkelundDepartment of Geriatric Medicine, Odense University Hospital, Odense, Denmark.ORCID 0000-0003-4596-288X
Karin Brochstedt DieperinkDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.ORCID 0000-0003-4766-3242
Morten SodemannDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.ORCID 0000-0001-8992-2500
Johanna Falby LindellDepartment of Nordic Studies and Linguistics, University of Copenhagen, Copenhagen, Denmark.ORCID 0000-0002-7994-7779
Karina Dahl SteffensenCenter for Shared Decision Making, Lillebaelt University Hospital of Southern Denmark, Vejle, Denmark.ORCID 0000-0002-9217-3907
Dorthe Susanne NielsenDepartment of Geriatric Medicine, Odense University Hospital, Odense, Denmark.ORCID 0000-0002-3954-7551

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeWhen serious illness occurs, effective communication is essential but challenged by language barriers. This study explores how patients with limited Danish proficiency and their families experience language barriers during cancer care in two Danish public hospitals.

methodAdopting a phenomenological-hermeneutic approach, the study stresses narratives in understanding participants' lived experiences. Accordingly, nine qualitative, semi-structured interviews were conducted with 17 informants, including nine patients and eight relatives. The interviews were audio-recorded and transcribed verbatim.

resultsBased on analysis, three themes were identified: 1) A history of pain behind the language barrier; 2) Linguistic pain-a feeling of being trapped in mother tongue; and 3) Barriers and pathways to linguistic safety. The findings reveal that painful stories were not only brought into the hospital but continued there. Painful feelings associated with being unable to communicate directly with the healthcare professionals seemed inescapable, but continuity of empathetic care providers, including professional interpreters, increased the well-being of both patients and family members.

conclusionLanguage barriers not only make patients more susceptible to misunderstandings and medical errors but amplify experiences of pain during cancer care. The generated knowledge from this study emphasizes language as a foundational element in advancing more equitable cancer care.

Indexed as

Communication BarriersFamilyLanguageNeoplasmsAdultAgedCommunicationDenmarkFemaleHumansInterviews as TopicMaleMiddle AgedQualitative Researchcancer careCommunicationDenmarkillness narrativeslanguage barrierslinguistic painlinguistic vulnerabilitypatient involvement

Identifiers

PMID39801442
PMCPMC11731038

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.