ArticleInternational journal of rheumatic diseases2025
"Excluding Myself From What I Need the Most": Experiences of Loneliness in People With Inflammatory Arthritis: A Qualitative Study.
Article in International journal of rheumatic diseases, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.
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Who cites it
3 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and facilitators to yoga practice among people living with arthritis: a qualitative systematic review.Rheumatology international · 2025Pooled it
- Healthcare Interventions in the Management of Rheumatic Diseases: A Narrative Analysis of Effectiveness and Emerging Strategies.Healthcare (Basel, Switzerland) · 2025Review
- Patients' Experiences Following Osteoarticular Foot Surgery for Rheumatoid Arthritis-Related Deformities: A Qualitative Study.Medicina (Kaunas, Lithuania) · 2025Article
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Authors and funding
10 authors.
Funding
Abstract
objectiveDespite advancements in pharmacological treatments, living with inflammatory arthritis (IA) (including rheumatoid arthritis (RA), psoriatic arthritis (PsA), and axial spondyloarthritis (axSpA)) can make it challenging to engage in social activities, which may increase the risk of loneliness. Although loneliness is predominantly prevalent in IA, its origin and impact on mental health status on daily life with IA remain unexplored. Therefore, the objective of this study was to describe the experiences of people with IA in relation to loneliness.
methodsSemi-structured telephone interviews were conducted with purposefully sampled participants who reported loneliness. Reflexive thematic analysis was applied to analyze data.
resultsThe interviews included fourteen participants (RA (n = 5), PsA (n = 5), and AxSpA (n = 4)) with median age of 47 (range 25-76). We developed three themes: (1) "Loneliness amplifies the negative impact of IA," illustrating the experience of loneliness as an integrated part of the participants' struggles; (2) "Excluding myself from what I need the most," detailing participants' awareness of their need but inability to engage in social activities; and (3) "Longing for loneliness to be addressed," expressing unfulfilled wishes for health professionals to address loneliness.
conclusionParticipants in our study reported that loneliness had a profound impact on their overall well-being and self-management. Overall, there is a critical need to address loneliness as an essential issue for people with IA, highlighting the necessity for increased support and recognition. By addressing loneliness, health professionals can protect patients' mental health and help them navigate social connections, enhancing their self-management and overall well-being.
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