Evidence map›Paper›PMID 39800390›Full record

ArticleBMJ open quality2025

Implementation of patient-reported outcome dashboards within the electronic health record to support shared decision-making in serious chronic illness.

Laura M Perry, Nisha A Mohindra, Ava Coughlin, Katy Bedjeti, Cynthia Barnard, Sofia F Garcia, Devin Peipert, Sheetal M Kircher, Vikram Aggarwal, Jeffrey Linder and 16 more

Abstract read
In one paragraph

Article in BMJ open quality, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Trial
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  3. Review
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  5. Article
  6. Article
  7. Qualitative study of patient-reported outcome data collection among clinicians in dermatology at a single academic center.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  8. Article
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  10. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

26 authors.

Laura M Perry *Center for Health Outcomes, Implementation, and Community-Engaged Science (CHOICES), Tulane University School of Medicine, New Orleans, Louisiana, USA lperry5@tulane.edu.ORCID http://orcid.org/0000-0001-6144-6266
Nisha A Mohindra *Division of Hematology/Oncology, Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Ava CoughlinDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Katy BedjetiDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Cynthia BarnardDivision of General Internal Medicine, Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Sofia F GarciaDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Devin PeipertDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Sheetal M KircherDivision of Hematology/Oncology, Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Vikram AggarwalDivision of Nephrology, Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Jeffrey LinderDivision of General Internal Medicine and Geriatrics, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.ORCID http://orcid.org/0000-0003-2217-184X
Melissa WeitzelDivision of Nephrology, Department of Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Victoria MorkenNorthwestern Medicine, Chicago, Illinois, USA.
Elijah PattenDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Jissell TorresDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Mary O'ConnorDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Susan MetzgerNorthwestern Medicine, Chicago, Illinois, USA.
Alesia O'danielNorthwestern Medicine, Chicago, Illinois, USA.
Ryan ChmielNorthwestern Medicine, Chicago, Illinois, USA.
Reena ModiNorthwestern Medicine, Chicago, Illinois, USA.
Michelle MunroeNorthwestern Medicine, Chicago, Illinois, USA.
Stavroula XinosNorthwestern Medicine, Chicago, Illinois, USA.
Glyn ElwynThe Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine, Dartmouth College, Hanover, New Hampshire, USA.
Eugene NelsonThe Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine, Dartmouth College, Hanover, New Hampshire, USA.
Aricca Van CittersThe Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine, Dartmouth College, Hanover, New Hampshire, USA.
David CellaDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.
Lisa HirschhornDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA.ORCID http://orcid.org/0000-0002-4355-7437

Funding

Research Design, Data, and Analytics CoreP30DK092949 · NIDDK · UNIVERSITY OF CHICAGO · PI MILDA Renne SAUNDERS · 2011 to 2026
$10.0M
Cancer Prevention, Control, and Survivorship Research Training ProgramT32CA193193 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Brian L Hitsman, BETINA YANEZ · 2015 to 2026
$3.8M
AHRQ HHS K12 HS026385NCI NIH HHS T32 CA193193NIDDK NIH HHS P30 DK092949
6 · The paper itself

Abstract

backgroundAttending to patient-reported outcomes (PROs) using data visualisation dashboards could enhance shared decision-making (SDM) and care delivery for serious chronic illnesses. However, few studies have evaluated real-world strategies and resulting implementation outcomes of PRO dashboards.

methodFrom June 2020 to January 2022, we implemented an electronic health record (EHR)-integrated PRO dashboard for advanced cancer and chronic kidney disease. Based on implementation science guidelines (eg, Framework for Reporting Adaptations and Modifications to Evidence-based Implementation Strategies, Reach, Effectiveness, Adoption, Implementation, Maintenance), we monitored use and captured adaptations in implementation strategies. Clinicians (n=7) and patients (n=30) responded to a 6-month survey that included appropriateness, acceptability, adoption and sustainability.

resultsOut of 1450 eligible patients, 748 (52%) completed at least one PRO invitation (reach). 37% of PRO questionnaire invitations (1421/3882) were completed (fidelity to PRO completion), with higher rates occurring when more implementation strategies were adopted. Among completed postvisit surveys from patients, 57% indicated that the dashboard was discussed at an eligible visit (fidelity to dashboard use). In the 6-month survey, patients endorsed the dashboard's acceptability and appropriateness: 77% felt it frequently provided clear information and 63% felt it frequently met their needs. Most patients (77%) and clinicians (86%) valued the dashboard for increasing SDM, and 57% of clinicians endorsed the dashboard's clinical sustainability. DISCUSSION: This pilot study demonstrated the clinical appropriateness, acceptability and feasibility of implementing an EHR-integrated PRO dashboard for advanced cancer and chronic kidney disease. Results also point to areas for improvement, including strategies to further support patient and clinician engagement, PRO completion and sustainability in real-world implementation.

Indexed as

Decision Making, SharedElectronic Health RecordsPatient Reported Outcome MeasuresAdultAgedChronic DiseaseFemaleHumansMaleMiddle AgedSurveys and QuestionnairesChronic disease managementImplementation sciencePatient-centred carePatient satisfactionShared decision making

Identifiers

PMID39800390
PMCPMC11752041

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.