Evidence map›Paper›PMID 39791460›Full record

ArticleActa paediatrica (Oslo, Norway : 1992)2025

Living in a bubble with profound difficulties-parents' experiences of extremely preterm survivors.

Malin Hansson, Aldina Pivodic, Chatarina Löfqvist, Karin Sävman, Boubou Hallberg, David Ley, Eva Morsing, Pia Lundgren, Jenny Gyllén, Carola Pfeiffer-Mosesson and 1 more

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In one paragraph

Article in Acta paediatrica (Oslo, Norway : 1992), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Malin HanssonInstitute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID 0000-0003-0877-2366
Aldina PivodicDepartment of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID 0000-0002-2224-3236
Chatarina LöfqvistInstitute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Karin SävmanDepartment of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Boubou HallbergSahlgrenska University Hospital, Gothenburg, Sweden.
David LeyDepartment of Pediatrics, Institute of Clinical Sciences, Skåne University Hospital Lund, Lund, Sweden.
Eva MorsingDepartment of Pediatrics, Clinical Sciences, Lund University, Lund, Sweden.
Pia LundgrenDepartment of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID 0000-0002-7731-1988
Jenny GyllénDepartment of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Carola Pfeiffer-MosessonDepartment of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Ann HellströmDepartment of Clinical Neuroscience, Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.ORCID 0000-0002-9259-1244

Funding

•Carmen and Bertil Regnér's Foundation•Cronqvist's foundation•De Blindas Vänner•Frimurare barnhusdirektionen•Government grants under the ALF agreement •ALFGBG-717971•Government grants under the ALF agreement •ALFGBG-971188•Government grants under the ALF agreement ALFGBG-984421•Knut and Alice Wallenberg Foundation•Ögonfonden•Swedish Medical Research Council •#2020-01092
6 · The paper itself

Abstract

aimTo analyse the challenges faced by parents of extremely preterm infants born before 24 weeks of gestation and the potential buffering effect of perceived resources on the family's health continuum.

methodsThe qualitative data were obtained from 70 parents of 70 infants born before 24 weeks of gestation, through open-ended questions in a survey. An inductive content analysis was conducted to identify themes and patterns in the parents' experiences. To enhance the understanding of the findings, salutogenic theory was incorporated to contextualise the emerging patterns of resources and deficits.

resultsParents described the neonatal care as exemplary. However, the integrated results showed that parents reported profound difficulties characterised as 'living in a bubble' with comprehensive neonatal care and varied access to support and participation. In addition, the parents had to manage a preterm born child with medical complexities and encountered significant barriers between care levels.

conclusionThe findings highlight the need to improve support systems and address challenges for families of preterm born children. Enhancing collaboration between healthcare providers and families, identifying and overcoming barriers during care, and providing comprehensive support services are crucial. Addressing the parents' experienced deficits may mitigate potential adverse effects on family health outcomes.

Indexed as

Infant, Extremely PrematureParentsAdultFemaleHumansInfant, NewbornMaleQualitative Researchextremely pretermparental well‐beingqualitative designsalutogenesistransition barriers

Identifiers

PMID39791460
PMCPMC12066922

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.