Evidence map›Paper›PMID 39782086›Full record

Observational studyJournal of applied gerontology : the official journal of the Southern Gerontological Society2025

"I Aim to Fulfill My Promise": Dementia Caregiving from the Perspective of Spouses and Partners.

Haley M Shiff, Theresa A Allison, Madina Halim, Kenneth E Covinsky, Alexander K Smith, Deborah E Barnes, Jennie M Gubner, Kara Zamora

Abstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Exploring the experiences and needs in everyday life of spouse carers of persons with dementia.International journal of qualitative studies on health and well-being · 2026
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Haley M ShiffDepartment of Medicine, New York Medical College, Valhalla, NY, USA.
Theresa A AllisonSan Francisco Division of Geriatrics, Department of Medicine, University of California, San Francisco, CA, USA.ORCID 0000-0003-4745-8468
Madina HalimSan Francisco Division of Geriatrics, Department of Medicine, University of California, San Francisco, CA, USA.
Kenneth E CovinskySan Francisco Division of Geriatrics, Department of Medicine, University of California, San Francisco, CA, USA.
Alexander K SmithSan Francisco Division of Geriatrics, Department of Medicine, University of California, San Francisco, CA, USA.
Deborah E BarnesSan Francisco Department of Psychiatry, University of California, San Francisco, CA, USA.
Jennie M GubnerSan Francisco Division of Geriatrics, Department of Medicine, University of California, San Francisco, CA, USA.
Kara ZamoraSan Francisco Division of Geriatrics, Department of Medicine, University of California, San Francisco, CA, USA.

Funding

VARC CoreP30AG044281 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Louise C. Walter · 2013 to 2026
$19.9M
UCLA Summer Research Training in Aging for Medical Stud*T35AG026736 · NIA · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI Cathy Lee, John C Newman · 2005 to 2026
$3.0M
The impact of music on well-being after diagnosis with Alzheimer's disease or its related dementiasRF1AG082292 · NIA · NORTHERN CALIFORNIA INSTITUTE/RES/EDU · PI ALLISON, THERESA ANNE · 2023 to 2023
$2.2M
Mentoring Researchers in Prognosis Research in Alzheimer’s Disease and Related DementiasK24AG068312 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Alexander Keliimoeanu Smith · 2020 to 2026
$1.2M
The Potential for Music to Improve Quality of Life in Dementia Caregiving RelationshipsK23AG062613 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI ALLISON, THERESA ANNE · 2019 to 2023
$993k
Intramural VA VA999999NIA NIH HHS K23 AG062613NIA NIH HHS K24 AG068312NIA NIH HHS P30 AG044281NIA NIH HHS RF1 AG082292NIA NIH HHS T35 AG026736
6 · The paper itself

Abstract

In the United States, spouses provide 17% of in-home care for people living with dementia. Negative impacts of dementia care on spouses/partners are well-documented, but we lack information about the holistic experience for spouses/partners. We conducted a secondary thematic analysis of data from two observational studies about everyday music engagement and dementia care at home. In this paper, we report on experiences of dementia care from the perspectives of spouses/partners. Participants included 15 people living with dementia (20% women, 20% people of color); 15 spouses/partners (73% women, 27% people of color). Individual experiences varied, but underlying patterns emerged: 1) Caregiving approaches were grounded in loyalty and commitment 2) Spouses

Indexed as

CaregiversDementiaMarriageMotivationSpousesAgedAged, 80 and overFemaleHumansMaleObservational Studies as TopicQualitative ResearchSecondary Data AnalysisSocial CohesionUnited Statescaregiving dyadsethnographic analysisspousal caregivers

Identifiers

PMID39782086
PMCPMC12238297

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.