Evidence map›Paper›PMID 39775206›Full record

ArticleMycopathologia2025

Advancing Patient Advocacy in Mycology: Cultivating Collaboration in Education, Research, and Policy.

Rob Purdie, Rasha Kuran, Ana Alastruey-Izquierdo, Hatim Sati, Juan Luis Rodriguez-Tudela, Martin Hoenigl, John Perfect, Rita Oladele, Thomas J Walsh, Tom Chiller

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Mycopathologia, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Rob PurdieMyCARE Foundation, Colorado Springs, CO, USA. rpurdie@fightfungus.org.ORCID http://orcid.org/0009-0009-0787-6578
Rasha KuranValley Fever Institute, Kern Medical, Bakersfield, CA, USA.
Ana Alastruey-IzquierdoMycology Reference Laboratory, National Centre for Microbiology, Instituto de Salud Carlos III, Madrid, Spain.
Hatim SatiDepartment of Global Coordination and Partnership on Antimicrobial Resistance, World Health Organization, Geneva, Switzerland.
Juan Luis Rodriguez-TudelaGlobal Action for Fungal Infections, Rue Le Corbusier 12, 1208, Geneva, Switzerland.
Martin HoeniglDivision of Infectious Diseases, ECMM Excellence Center of Medical Mycology, Department of Internal Medicine, Medical University of Graz, Graz, Austria. hoeniglmartin@gmail.com.
John PerfectInfectious Diseases, Duke University, Durham, NC, USA.
Rita OladeleCollege of Medicine, University of Lagos, Lagos, Nigeria.
Thomas J WalshCenter for Innovative Therapeutics and Diagnostics, Richmond, VA, USA.
Tom ChillerMycotic Diseases Branch, Centers for Disease Control and Prevention, Atlanta, GA, USA.

Funding

World Health Organization 001
6 · The paper itself

Abstract

In the healthcare landscape, diseases such as cancer and HIV/AIDS have benefited from the patient's perspective. For fungal diseases, the patient voice remains absent in critical areas such as policy formulation, funding decisions, and research priorities. Patients affected by fungal disease, along with their caregivers and advocacy groups, possess invaluable insights into the challenges and unmet needs they face. By elevating their voices and experiences, policymakers, funding agencies, and researchers can gain a more comprehensive understanding of the multifaceted nature of fungal disease and the urgency of addressing them. This paper addresses the pressing need for a coordinated effort to elevate the patient voice in advocating for improved policies, increased funding, and enhanced research initiatives regarding fungal disease.

Indexed as

Patient AdvocacyBiomedical ResearchHealth PolicyHumansMycologyMycosesAMRAntimicrobial resistanceFungal diseaseFungusLived experienceMycologyPatient advocacy

Identifiers

PMID39775206
PMCPMC11711558

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.