Evidence map›Paper›PMID 39773172›Full record

ArticleBMC public health2025

"Ashamed of being seen in an HIV clinic": a qualitative analysis of barriers to engaging in HIV care from the perspectives of patients and healthcare workers in the Daraja clinical trial.

Elialilia S Okello, Robert N Peck, Benson Issarow, Godfrey Kisigo, Kelvin Abel, Donati Malibwa, Severin Kabakama, Marco Charles, Myung Lee, Thomas Rutachunzibwa and 5 more

Registry-linked trialAbstract read
In one paragraph

Article in BMC public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03858998 (Reducing Post-Hospital Mortality in HIV-infected Adults in Tanzania), which is not on this map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03858998 nacompletednot on this map

Reducing Post-Hospital Mortality in HIV-infected Adults in Tanzania

TypeinterventionalSponsorWeill Medical College of Cornell UniversityRan2019 to 2024Enrolled500ConditionsHIV InfectionsArmsCase Management Intervention, Control
3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Trial
  4. Article
  5. Article
  6. Article
  7. Review
  8. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Elialilia S OkelloMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania. elly16.sp@gmail.com.
Robert N PeckMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Benson IssarowMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Godfrey KisigoMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Kelvin AbelMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Donati MalibwaMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Severin KabakamaMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Marco CharlesMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Myung LeeCenter for Global Health, Department of Medicine, Weill Cornell Medicine, New York, USA.
Thomas RutachunzibwaCommunity Development, Gender, Elderly, and Children, Ministry of Health, Mwanza, Tanzania.
Daniel FitzgeraldCenter for Global Health, Department of Medicine, Weill Cornell Medicine, New York, USA.
Philip AyiekoMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Heiner GrosskurthMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.
Lisa R MetschDepartment of Sociomedical Sciences, Mailman School of Public Health, Columbia University, New York, USA.
Saidi KapigaMwanza Intervention Trials Unit, National Institute for Medical Research, Mwanza, Tanzania.

Funding

Reducing Post-Hospital Mortality in HIV-Infected Adults in TanzaniaR01MH118107 · NIMH · WEILL MEDICAL COLL OF CORNELL UNIV · PI PECK, ROBERT N · 2018 to 2022
$2.7M
NIMH NIH HHS R01 MH118107This publication was part of the Daraja trial funded by the National Institute of Mental Health of the National Institutes of Health (NIH) R01MH118107
6 · The paper itself

Abstract

backgroundThere is high post-hospital discharge mortality among persons with HIV who are hospitalized, and post-hospital survival is strongly associated with early HIV clinic linkage, clinic attendance, and antiretroviral therapy adherence. The Daraja intervention, a context-tailored case management strategy implemented and tested through a randomized trial in Tanzania, was associated with improved HIV clinic linkage, retention, and ART initiation and adherence.

methodsWe conducted in-depth interviews (IDIs) in a sub-sample of 40 study participants (20 control and 20 intervention) 12 months after enrollment into the trial to gain an in-depth understanding of the barriers to HIV care engagement and the perceived mechanisms through which the Daraja intervention impacted these barriers. We also conducted IDIs with 20 health care providers. We used a thematic analysis approach to generate themes following the Gelberg-Andersen behavioral model for vulnerable population domains.

resultsPerceived stigma, coupled with the mistrust of healthcare providers, underemployment or lack of reliable income, unreliable transport, and a lack of social support, were identified as key barriers to HIV clinic attendance and ART adherence. Perceived stigma complicated not only linking to and attending an HIV clinic but also decision-making regarding the choice of the clinic's location. The Daraja intervention was reported to help normalise HIV diagnosis, plug the social support gap, increase patients' self-efficacy and their capacity of participants to navigate the HIV clinic during HIV clinic linkage.

conclusionThese qualitative research results identified several important barriers to engaging in HIV care and provide insights into the mechanisms through which the Daraja intervention operated to affect the perceived stigma, social support, self-efficacy, and increased capacity of participants to navigate the HIV clinic during HIV clinic linkage. DARAJA

trial registrationClinicalTrials.gov, NCT03858998. Registered on 01 March 2019.

Indexed as

HIV InfectionsQualitative ResearchSocial StigmaAdultAmbulatory Care FacilitiesFemaleHealth PersonnelHumansInterviews as TopicMaleMiddle AgedMulticenter Studies as TopicPatient Acceptance of Health CareRandomized Controlled Trials as TopicTanzaniaYoung AdultART adherenceBarriersClinic attendancePerceived stigmaTanzania

Identifiers

PMID39773172
PMCPMC11706178

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.