SynthesisJournal of applied research in intellectual disabilities : JARID2025
Parental Experiences of Quality of Life When Caring for Their Children With Intellectual Disability: A Meta-Aggregation Systematic Review.
Synthesis in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07205406 (Effect of Parenting Training on Quality of Life and Parenting in Parents Who Have Children With Intellectual Disabilities), which is not on this map. Cited by 12 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Effect of Parenting Training on Quality of Life and Parenting in Parents Who Have Children With Intellectual Disabilities
Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Psychological interventions and mental health outcomes among caregivers of children with intellectual disability: a systematic review and meta-analysis.Frontiers in psychology · 2026Pooled it
- 24-Hour movement behaviour and quality of life among Chinese caregivers of children with intellectual disabilities: a compositional analysis.Preventive medicine reports · 2026Article
- Feasibility and Acceptability of Craniosacral Therapy and Respiratory Training in Mothers of Children with Disabilities: Protocol for a Three-Arm Non-Randomized Controlled Pilot and Feasibility Study.Healthcare (Basel, Switzerland) · 2026Article
- Caregiving burden, physical activity, psychosocial factors, and maternal cognitive function in mothers of children with developmental disabilities: a cross-sectional study.BMC psychology · 2026Article
- Long-term follow-up for mothers of children with disability after healthy mothers healthy families e-workshops.Australian occupational therapy journal · 2026Article
- Assessment of child-parent dyads' health-related quality of life in learning disorder care: a cross-sectional study in eastern China.Translational pediatrics · 2026Article
- Article
- Family quality of life in the context of Rett syndrome: insights from Brazilian families.Journal of community genetics · 2026Article
- Factors Associated With Social Inclusion and Labour Status in People With Intellectual Disabilities, From Urban and Rural Areas of Peru.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Psychosocial and caregiving challenges of mothers of children with disabilities in Iran: a qualitative study.BMC psychology · 2025Article
- Parental Stress and Family Quality of Life in Families of Individuals Living With Angelman Syndrome.Journal of intellectual disability research : JIDR · 2025Article
- The financial challenges of caring for children with profound intellectual disability as experienced by newly qualified nurses.BMC nursing · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundParents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children.
methodA qualitative systematic review following Joanna Briggs Institute meta-aggregation approach has been completed and reported according to PRISMA guidelines.
findingsSeventeen qualitative studies were included. Three synthesised findings were identified: 'Challenges and rewards of being a parent carer', 'The real cost of caregiver burden' and 'Surrendering self for duty - the mothers role'.
conclusionParents of children with moderate to profound intellectual disabilities reported diminished quality of life for themselves and their families, experiencing increased physical and mental health issues associated with caregiving burdens. Future research is needed that determine what effective support systems and interventions are needed to alleviate parental caregiver burden.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.