Evidence map›Paper›PMID 39760121›Full record

ArticleJournal of virus eradication2024

Relatively high interest but limited active engagement in HIV cure research: Awareness, interest, and information-seeking among affected communities in the Netherlands.

Maaike A J Noorman, John B F de Wit, Tamika A Marcos, Sarah E Stutterheim, Thijs Albers, Kai J Jonas, Chantal den Daas

Abstract read
In one paragraph

Article in Journal of virus eradication, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Maaike A J NoormanDepartment of Interdisciplinary Social Science, Utrecht University, Utrecht, the Netherlands.
John B F de WitDepartment of Interdisciplinary Social Science, Utrecht University, Utrecht, the Netherlands.
Tamika A MarcosDepartment of Work and Social Psychology, Maastricht University, Maastricht, the Netherlands.
Sarah E StutterheimDepartment of Health Promotion and Care and Public Health Research Institute, Maastricht University, Maastricht, the Netherlands.
Thijs AlbersHiv Vereniging, Amsterdam, the Netherlands.
Kai J JonasDepartment of Work and Social Psychology, Maastricht University, Maastricht, the Netherlands.
Chantal den DaasHealth Psychology Group Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Community engagement is important for inclusive HIV cure development. This study evaluates current engagement in HIV cure research among affected communities in the Netherlands by analyzing awareness, interest, and information-seeking behavior. It also identifies participant characteristics and HIV-related illness perceptions linked to each engagement stage. Methods: A cross-sectional survey was conducted from July 2023 to March 2024, involving 499 people with HIV and 578 individuals without HIV, including partners and gay, bisexual, and other men who have sex with men. Multivariate regression analyses examined the relationships between participant characteristics, HIV-related illness perceptions, and three outcomes: awareness, interest, and information-seeking. Results: The mean awareness was 3.08 (SD = 0.99) interest was higher at 3.67 (SD = 0.85), while the information-seeking frequency was lower at 2.33 (SD = 0.97). Higher awareness was seen in older participants, non-cisgender men, and those with increased perceived control and comprehensibility of HIV. Interest in cure research was higher among people with HIV, those with a migration background, individuals with steady partner(s), and those experiencing greater HIV-related concerns, negative HIV-related emotions, and better HIV comprehension. Information-seeking frequency was greater among people with HIV, those with a bachelor's degree, individuals from a migration background, those with steady partner(s), and those perceiving more severe HIV-related symptoms, and heightened concerns and negative emotions about HIV. Conclusion: While moderate awareness exists, engagement remains passive with limited information-seeking; however, significant interest in a cure underscores the need for enhanced communication efforts to foster inclusive HIV cure development.

Indexed as

Community engagementGBMSMHIVHIV cureMIPAPartnersPeople with HIV

Identifiers

PMID39760121
PMCPMC11697764

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.