Evidence map›Paper›PMID 39754199›Full record

ArticleBMC women's health2025

Online health information seeking behavior among breast cancer patients and survivors: a scoping review.

Jialin Chen, Yiwen Duan, Haozhi Xia, Runxi Xiao, Tingting Cai, Changrong Yuan

Abstract readScoping Review
In one paragraph

Article in BMC women's health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed.

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  9. Preferences for electronic health information support concerning chemotherapy adverse reactions among young and middle-aged breast cancer patients based on the Kano model.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Jialin ChenSchool of Nursing, Fudan University, 305 Fenglin Road, Shanghai, 200032, China.
Yiwen DuanSchool of Nursing, Fudan University, 305 Fenglin Road, Shanghai, 200032, China.
Haozhi XiaSchool of Nursing, Nanjing University of Chinese Medicine, Nanjing, 210023, Jiangsu, China.
Runxi XiaoSchool of Nursing, Fudan University, 305 Fenglin Road, Shanghai, 200032, China.
Tingting Cai *School of Nursing, Fudan University, 305 Fenglin Road, Shanghai, 200032, China. caitingtingguo@163.com.ORCID 0000-0002-3473-8412
Changrong Yuan *School of Nursing, Fudan University, 305 Fenglin Road, Shanghai, 200032, China. yuancr@fudan.edu.cn.ORCID 0000-0001-8480-2569

Funding

National Natural Science Foundation of China 72374048Wellcome Trust 202401
6 · The paper itself

Abstract

purposeThis scoping review aims to summarize online health information seeking (OHIS) behavior among breast cancer patients and survivors, identify research gaps, and offer insights for future studies.

methodsFollowing Arksey and O'Malley's framework, we conducted a review across PubMed, Web of Science, CINAHL, MEDLINE, Cochrane, Embase, CNKI, Wanfang Data, and SinoMed, covering literature from 1 January 2014 to 13 August 2023. A total of 1,368 articles were identified, with 33 meeting the inclusion criteria. Two researchers independently screened, extracted, and summarized the data.

resultsThe studies addressed three main themes:OHIS behavior, factors associated with OHIS, and intervention programs on OHIS. Key information sources included national or nonprofit cancer organizations' websites, search engines, and social media. Commonly sought information involved breast cancer knowledge, treatment options, and prognosis, with information seeking behaviors varying by disease stages. While patients valued the convenience and accessibility of online resources, dissatisfaction was common due to inaccurate or misleading content. Factors such as age, education, income, disease characteristics, and psychological factors significantly influenced OHIS behaviors.

conclusionThis review identifies significant gaps in exploring OHIS behavior among breast cancer patients and survivors, highlighting the inadequacy of current interventions. Future research should focus on diverse age groups, refine the language of web-based health information, enhance user comprehension of professional content, and develop tailored information systems for different stages of the health journey.

Indexed as

Breast NeoplasmsCancer SurvivorsInformation Seeking BehaviorInternetConsumer Health InformationFemaleHumansSocial MediaBreast cancerHealth informationOnline health information seekingSocial media

Identifiers

PMID39754199
PMCPMC11697865

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.