Evidence map›Paper›PMID 39751701›Full record

ArticleEuropean journal of epidemiology2025

Prevalence and incidence of mastocytosis in adults: a Danish nationwide register study.

Maren Poulsgaard Jørgensen, Andreas Kiesbye Øvlisen, Jonas Faartoft Jensen, Tarec Christoffer El-Galaly, Maiken Glud Dalager, Hanne Vestergaard, Sigurd Broesby-Olsen, Marianne Tang Severinsen

Abstract read
In one paragraph

Article in European journal of epidemiology, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Observational
  6. Mastocytosis.Nature reviews. Disease primers · 2025
    Review
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Maren Poulsgaard JørgensenDepartment of Hematology, Clinical Cancer Research Center, Aalborg University Hospital, Aalborg, Denmark. maren.joergensen@rn.dk.ORCID http://orcid.org/0009-0007-2882-924X
Andreas Kiesbye ØvlisenDepartment of Hematology, Clinical Cancer Research Center, Aalborg University Hospital, Aalborg, Denmark.ORCID http://orcid.org/0000-0002-4631-9936
Jonas Faartoft JensenDepartment of Hematology, Clinical Cancer Research Center, Aalborg University Hospital, Aalborg, Denmark.ORCID http://orcid.org/0009-0000-1006-4751
Tarec Christoffer El-GalalyDepartment of Hematology, Clinical Cancer Research Center, Aalborg University Hospital, Aalborg, Denmark.ORCID http://orcid.org/0000-0002-4406-380X
Maiken Glud DalagerDepartment of Dermatology, Aalborg University Hospital, Aalborg, Denmark.
Hanne VestergaardDepartment of Hematology, Odense University Hospital, Odense, Denmark.ORCID http://orcid.org/0000-0002-9354-8221
Sigurd Broesby-OlsenMastocytosis Centre, Odense University Hospital (MastOUH), Odense University Hospital, Odense, Denmark.ORCID http://orcid.org/0000-0002-1558-8471
Marianne Tang SeverinsenDepartment of Hematology, Clinical Cancer Research Center, Aalborg University Hospital, Aalborg, Denmark.ORCID http://orcid.org/0000-0003-0996-1812

Funding

Aase og Ejnar Danielsens Fond Aase og Ejnar Danielsens FondKaren Elise Jensens Fond Karen Elise Jensens Fond
6 · The paper itself

Abstract

introductionMastocytosis is a group of rare heterogeneous diseases with a prevalence previously found to be 10-23 per 100,000 persons. More awareness and improvements in the diagnostic methods in later years have led to more patients being diagnosed. Here, we set out to present the prevalence and incidence rate of mastocytosis among the adult Danish population. By merging data from the Danish National Patient Register, the Danish Pathology Register and the Danish Cancer Register we included all adult patients (≥ 18 years) diagnosed with mastocytosis in Denmark prior to 2022. A cohort of 1,594 patients with mastocytosis was identified. The prevalence of mastocytosis was 27.43 per 100,000 persons (95% confidence interval [CI]: 25.95-28.96) as of January 1, 2022, and the 25-year average incidence rate between 1997 and 2021 was 1.21 per 100,000 persons (95%CI: 1.02-1.40) with an increasing incidence rate since 2002. We found a higher prevalence of mastocytosis among adults in the Danish population than previously reported, and an increasing incidence rate during the last 20 years. Increased awareness of the disease and better diagnostic methods most likely contributed to this.

Indexed as

MastocytosisAdolescentAdultAgedAged, 80 and overDenmarkFemaleHumansIncidenceMaleMiddle AgedPrevalenceRegistriesYoung AdultIncidenceMastocytosisOverall survivalPopulation-basedPrevalence

Identifiers

PMID39751701
PMCPMC11799073

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.