Evidence map›Paper›PMID 39740139›Full record

ArticleJMIR human factors2024

Collecting Feedback From Neurologists and Patients to Guide Development of a Parkinson Disease App (DigiPark): Qualitative, Noninterventional Study.

Martin Duracinsky, Eva Brown Hajdukova, Fabienne Péretz, Julie Sauzin, Neziha Gouider-Khouja, Caroline Atlani, Djamchid Dalili

Abstract read
In one paragraph

Article in JMIR human factors, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Martin Duracinsky *Patient-Reported Outcomes Research, Health Economics Clinical Trial Unit, Hotel-Dieu Hospital, Assistance Publique - Hôpitaux de Paris, Paris, France.ORCID 0000-0003-3901-2255
Eva Brown Hajdukova *Patient-Reported Outcomes Research, Health Economics Clinical Trial Unit, Hotel-Dieu Hospital, Assistance Publique - Hôpitaux de Paris, Paris, France.ORCID 0000-0001-6127-7001
Fabienne PéretzMyPubli, Saint-Georges-sur-Baulche, France.ORCID 0009-0005-6170-3249
Julie SauzinCare Lab, Paris Brain Institute, Paris, France.ORCID 0009-0007-6944-7723
Neziha Gouider-KhoujaSoukra Medical Center, Tunis, Tunisia.ORCID 0000-0003-2919-4788
Caroline AtlaniDiampark, Paris, France.ORCID 0009-0003-6370-3045
Djamchid DaliliDiampark, Paris, France.ORCID 0000-0002-9724-1155

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Parkinson disease (PD) is a worldwide, fast-growing, progressive neurodegenerative condition. Its multifaceted clinical presentation includes a wide range of motor and nonmotor symptoms. Smartphones present a potential solution to better monitor and subsequently alleviate PD symptoms. Objective: The aim of this study is to explore neurologists' and patients' needs and preferences regarding the design and functionality of a new smartphone app for PD, DigiPark. Methods: This qualitative, noninterventional study gathered data through two primary methods: (1) by conducting interviews with 9 neurologists and (2) through a usability test including 5 patients with PD. Results: The neurologists affirmed the necessity for a patient-centered app, highlighting the complexities of PD management. They advocated for personalized app functionalities to improve patients' quality of life and emphasized the need for enhanced patient-provider communication. Feedback from the usability test indicated a preference for a clear, simple user interface, as well as elucidation of the app's benefits. Concerns about the app's time demands and the complexity of certain features like medication management were expressed. Furthermore, patients with PD consistently showed interest in features that could track and monitor their progress over time. This highlights the need to include clear benefits within the app to maintain user engagement and commitment. Conclusions: Neurologists' and patients' feedback on the design and functionality of the app complement each other. Collaborative efforts in shaping the app should better address genuine PD management needs. Future clinical trial inclusion can further validate the efficacy of DigiPark.

Indexed as

Mobile ApplicationsNeurologistsParkinson DiseaseQualitative ResearchAdultAgedFeedbackFemaleHumansMaleMiddle AgedQuality of LifeSmartphoneDigiParkmHealthmobile healthParkinson diseasepatient-centered appsmartphonesusability testing

Identifiers

PMID39740139
PMCPMC11706441

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.