Evidence map›Paper›PMID 39734300›Full record

ArticleJournal of movement disorders2025

Validation of the Korean Version of the Huntington's Disease Quality of Life Battery for Carers.

Hee Jin Chang, Eungseok Oh, Won Tae Yoon, Chan Young Lee, Kyum-Yil Kwon, Yun Su Hwang, Chaewon Shin, Jee-Young Lee

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Article in Journal of movement disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

8 authors.

Hee Jin ChangDepartment of Neurology, Chungnam National University Hospital, Chungnam National University College of Medicine, Daejeon, Korea.
Eungseok OhDepartment of Neurology, Chungnam National University Hospital, Chungnam National University College of Medicine, Daejeon, Korea.
Won Tae YoonDepartment of Neurology, Kangbuk Samsung Hospital, Sungkyunkwan University School of Medicine, Seoul, Korea.
Chan Young LeeDepartment of Neurology, Ewha Womans University Mokdong Hospital, Ewha Womans University College of Medicine, Seoul, Korea.
Kyum-Yil KwonDepartment of Neurology, Soonchunhyang University Seoul Hospital, Seoul, Korea.
Yun Su HwangDepartment of Neurology, Jeonbuk National University Medical School and Hospital, Jeonju, Korea.
Chaewon ShinDepartment of Neurology, Chungnam National University Sejong Hospital, Chungnam National University College of Medicine, Sejong, Korea.
Jee-Young LeeDepartment of Neurology, SMG-SNU Boramae Medical Center, Seoul National University College of Medicine, Seoul, Korea.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThe Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) is used to evaluate caregiver quality of life. This study aimed to develop and validate the Korean version of the HDQoL-C (K-HDQoL-C) to assess the burden on Korean caregivers of Huntington's disease (HD) patients.

methodsA total of 19 HD caregivers (7 females, mean age 55.4±14.6 years) participated in this study. The K-HDQoL-C, a translation of the English version, consisted of demographic information, caring aspects, life satisfaction, and feelings about life. It was administered twice, 2 weeks apart. Internal consistency was evaluated using Cronbach's α, and test-retest reliability was assessed with intraclass correlation coefficients. The relationship with the Zarit Burden Interview-12 (ZBI-12) was analyzed.

resultsThe internal consistencies of the K-HDQoL-C were 0.771 (part 2), 0.938 (part 3), and 0.891 (part 4). The test-retest reliability ranged from 0.908 to 0.936. Part 3 was negatively correlated with the ZBI-12, and part 4 was positively correlated with the ZBI-12 (r=-0.780, 0.923; p<0.001).

conclusionThe K-HDQoL-C effectively evaluates the challenges faced by HD caregivers, particularly in terms of care aspects and life satisfaction.

Indexed as

Burden of illnessCaregiver burdenHuntington’s diseaseNeurodegenerative diseasesQuality of life

Identifiers

PMID39734300
PMCPMC12061617

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.