ArticleBMC health services research2024
Caregivers' experiences, challenges, and needs in caring for people with dementia in India: a scoping review.
Article in BMC health services research, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- Unveiling the qualities of a 'good doctor': family carers' and healthcare professionals' perspective on dementia healthcare in India.International journal for equity in health · 2025Article
- Bridging the gap: Essential factors for poststroke community reintegration in low-and-middle income countries.PloS one · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAs the world's most populous country, India faces a growing challenge in addressing dementia, in which advancing age remains the strongest risk factor. Approximately 8.8 million Indians over the age of 60 are currently affected by this condition. While much of the research on dementia caregiving focuses on Western societies, caregiving experiences are shaped profoundly by cultural and socioeconomic contexts, which vary significantly in India. Unique social norms, combined with limited resources, make the burden on dementia caregivers in India both distinct and understudied. This scoping review synthesized existing literature on the experiences, challenges, and needs of dementia caregivers in India, providing critical insights for developing culturally tailored support systems and informing public health initiatives.
methodsA comprehensive database search for literature was conducted in April 2022 and updated in September 2024 in six databases (Medline, Embase, PsycINFO, CINAHL, Web of Science and Epistemonikos). The databases were systematically searched for original qualitative and quantitative peer-reviewed studies conducted in India between 2000 and 2024. The scoping review was registered with the Open Science Framework and was reported in accordance with Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews Checklist (PRISMA-ScR).
resultsAfter identifying, screening, and reviewing articles for eligibility, we critically appraised and included a sample of 27 studies in this review. The data synthesis process identified three main themes: (1) navigating the dual realities of caregiving: challenges and rewards for family caregivers in India, (2) gaps in support for home-based care: challenges faced by family caregivers in rural parts of India, and (3) addressing the present and future needs of caregivers for people with dementia in India.
conclusionThis scoping review reveals the experiences, challenges, and needs of caregivers for people with dementia, including caregiver burden, stress, and poor health among caregivers resulting from inadequate support, insufficient respite care, and a lack of information about dementia. Health and social services offering dementia care are critically needed in India, where population aging is imminent.
trial registrationhttps://doi.org/10.17605/OSF.IO/4MJDC .
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