Evidence map›Paper›PMID 39727909›Full record

ArticleEuropean burn journal2024

What Outcomes Matter Most to Paediatric Burn Patients and Their Caregivers: A Comparison of Short-Term and Long-Term Priorities.

Inge Spronk, Dale W Edgar, Victoria Shoesmith, Corine A Lansdorp, Mark W Fear, Fiona M Wood, Lisa J Martin

Abstract read
In one paragraph

Article in European burn journal, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Inge SpronkDutch Burns Foundation, 1941 AJ Beverwijk, The Netherlands.ORCID 0000-0001-9571-576X
Dale W EdgarState Adult Burn Unit, Fiona Stanley Hospital, South Metropolitan Health Service, Murdoch, WA 6150, Australia.ORCID 0000-0001-7336-9317
Victoria ShoesmithFiona Wood Foundation, Murdoch, WA 6150, Australia.
Corine A LansdorpAmsterdam UMC location Vrije Universiteit Amsterdam, Plastic, Reconstructive and Hand Surgery, 1081 HZ Amsterdam, The Netherlands.
Mark W FearBurn Injury Research Unit, School of Biomedical Sciences, University of Western Australia, Crawley, WA 6009, Australia.ORCID 0000-0003-3163-4666
Fiona M WoodState Adult Burn Unit, Fiona Stanley Hospital, South Metropolitan Health Service, Murdoch, WA 6150, Australia.ORCID 0000-0001-5427-6588
Lisa J MartinBurn Injury Research Unit, School of Biomedical Sciences, University of Western Australia, Crawley, WA 6009, Australia.ORCID 0000-0001-8947-834X

Funding

Dutch Burns Foundation NA
6 · The paper itself

Abstract

Identifying outcomes that matter most is key in driving specialized paediatric burn care. The aim of this study was to discover the most important outcomes for paediatric burns. Parents of children (0-3 year and 4-11 years old) and adolescents (12-17 yearss old) completed surveys to identify outcomes that matter most in the short-term (<6 months postburn) and long-term (6-24 months postburn). The percentage of patients scoring an outcome as 'very important' was used to rank the outcomes. Fifty-four parents/adolescents participated (response rate: 27%). Children had a median TBSA burned of 5.0% (IQR: 2.0-7.0%). In the short-term, 'good wound healing' and 'no wound infection' (both at 71.4-100%) were very important for all children. 'Not having pain' (90.3-93.8%) was ranked highest for children ≤11 years old, whereas 'walking or moving around' (85.7%) was most important for older children. In the long-term, more variation was seen in outcome priorities; however, both 'not having pain' (53.6-85.7%) and 'flexibility of scar(s)' (60.7-71.4%) were considered very important by all three groups. Patient- and parent-derived priorities are important for developing consumer-centric, highest-value care pathways. The priority of the outcomes identified is a starting point to discuss treatment options and recovery priorities in a family-centric approach to guide high-value, individualized care.

Indexed as

burn injurieschildren with burnsoutcomespatient priorities

Identifiers

PMID39727909
PMCPMC11675973

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.