Evidence map›Paper›PMID 39722436›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2024

Users' Perspectives on the Organization of Rehabilitation Services - A Focus Group Study of User Organization Representatives in Norway.

Helene Lundgaard Søberg, Per Koren Solvang, Nada Andelic, Cecilie Røe, Marit Kirkevold

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Article in Health expectations : an international journal of public participation in health care and health policy, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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1citing papers in PubMed
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1 · What the graph read from it

What it found

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3 · Its place in the literature

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1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Helene Lundgaard SøbergDepartment of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway.ORCID 0000-0001-6908-7480
Per Koren SolvangFaculty of Health Sciences, Oslo Metropolitan University, OsloMet, Oslo, Norway.ORCID 0000-0002-6494-3417
Nada AndelicDepartment of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway.ORCID 0000-0002-3719-4406
Cecilie RøeDepartment of Physical Medicine and Rehabilitation, Oslo University Hospital, Oslo, Norway.ORCID 0000-0001-5186-0674
Marit KirkevoldFaculty of Health Sciences, Oslo Metropolitan University, OsloMet, Oslo, Norway.ORCID 0000-0002-3979-0631

Funding

The authors received no specific funding for this work.
6 · The paper itself

Abstract

backgroundUser organizations for people with disabilities in Norway work for social equality and participation, and quality of health services for people with disabilities, chronic illnesses and reduced functional capacity. Consideration of the experiences from user representatives is necessary when determining the quality and appropriateness of the rehabilitation services. Rehabilitation services constitute the provision and delivery of intangible products to maintain or improve functioning in individual patients or patient groups. Rehabilitation services can be characterized at the policy (macro), organizational (meso) and individual (micro) levels.

objectivesTo explore user representatives' perspectives on rehabilitation service provision and organization and how they experience the influence they exert.

methodsFocus group interviews with 14 representatives nominated from 11 user organizations in Norway conducted in 2021. Two online focus groups using a semi-structured interview guide were conducted. Data analysis was performed according to Braun and Clarke's thematic data analysis.

resultsSix core themes were developed when analyzing the participants' experiences and opinions regarding rehabilitation services. The themes were inter-connected and addressed perspectives on Access to services, Integration of care, Rehabilitation team, Person centeredness, System and governance and Modes of user representation and contribution.

conclusionThe user representatives revealed tension and complexity influencing the provision and organization of rehabilitation services from individual access to health policy and regulation. Empowering user representatives through training was important to fight tokenism. Filling the role of a user representative at the meso level requires the integration of personal and peer experiences at the micro level, and knowledge of health policy regulations at the macro level. PATIENT OR PUBLIC CONTRIBUTION: The Norwegian Federation of Organisations of Persons with Disabilities recruited user representatives in this study. The user representatives participated in the assessment and discussion of the results of the study. The results were presented for discussion to the User panel at the Research Centre for Habilitation and Rehabilitation Models & Services (CHARM) at the University of Oslo.

Indexed as

Focus GroupsPersons with DisabilitiesAdultFemaleHealth Services AccessibilityHumansInterviews as TopicMaleMiddle AgedNorwayQualitative Researchhealth servicespatient advocacypatient participationpatient representativesrehabilitation

Identifiers

PMID39722436
PMCPMC11669625

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.