Evidence map›Paper›PMID 39717518›Full record

ArticleContemporary clinical trials communications2024

Using community engagement with

Jordana L Clayton, Rebecca L Utz, Nancy Aruscavage, Sara G Bybee, Sharon E Bigger, Eli Iacob, Kara B Dassel

Registry-linked trialAbstract read
In one paragraph

Article in Contemporary clinical trials communications, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05909189 (LEADing Dementia End-of-Life Planning Conversations), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05909189 naactive not recruitingnot on this map

LEADing Dementia End-of-Life Planning Conversations

TypeinterventionalSponsorUniversity of UtahRan2024 to 2027Enrolled120ConditionsAlzheimer Disease, Mild Cognitive ImpairmentArmsLEADing Dementia End-of-Life Planning Conversations
3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jordana L ClaytonCollege of Social and Behavioral Sciences, University of Utah, Carolyn and Kem Gardner Commons Suite 3725, 260 S Central Campus Dr, Salt Lake City, UT, 84112, USA.
Rebecca L UtzCollege of Social and Behavioral Sciences, University of Utah, Carolyn and Kem Gardner Commons Suite 3725, 260 S Central Campus Dr, Salt Lake City, UT, 84112, USA.
Nancy AruscavageCollege of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.
Sara G BybeeCollege of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.
Sharon E BiggerCollege of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.
Eli IacobCollege of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.
Kara B DasselCollege of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.

Funding

CTSA UM1 Program at University of UtahUM1TR004409 · NCATS · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI RACHEL HESS, Jennifer Juhl Majersik · 2023 to 2026
$21.9M
LEADing End-of-Life Dementia Care ConversationsR01AG069033 · NIA · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI KARA Bottiggi Dassel · 2022 to 2026
$3.1M
NCATS NIH HHS UM1 TR004409NIA NIH HHS R01 AG069033
6 · The paper itself

Abstract

Community engagement is increasingly considered a key component of intervention development, as it can leverage community members' knowledge, experiences, and insights to create a nuanced intervention which meets the needs, preferences, and realities of the population of interest. Community engagement exists along a spectrum from outreach to the community to partnership with community members and organizations, and all levels of community engagement can benefit from systematic documentation of community feedback and decision-making processes. This paper demonstrates how we utilized the "Framework for Reporting Adaptations and Modifications to Evidence-based Interventions" (FRAME; Wiltsey Stirman et al., 2019) model to track and report adaptations to our dementia end-of-life care planning intervention based on community engagement via a project-specific Community Advisory Board (CAB). Using FRAME, we generated a comprehensive report of the iterative changes made to our pilot intervention, including whether the change was planned, who made the decision to modify the intervention, the nature of the change, its relationship to intervention fidelity, and the reason for the change. This process ensured that we effectively integrated feedback and assistance from our CAB, increased the appropriateness of our intervention for our population of interest, established criteria to monitor intervention fidelity, and prepared our team to run a rigorous clinical trial of the revised intervention. Clinical Trial Registration Number: NCT05909189.

Indexed as

AdaptationsCommunity advisory board (CAB)Community-engaged researchInterventions

Identifiers

PMID39717518
PMCPMC11664155

What OpenQuestion holds

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LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.