Evidence map›Paper›PMID 39712954›Full record

ArticleGenetics in medicine open2024

Genetic counseling workforce diversity, inclusion, and capacity in Australia and New Zealand.

Anaita Kanga-Parabia, Lucas Mitchell, Renee Smyth, Trisha Kapoor, Jaitika Duggal, Amy Pearn, Rachel Williams, Eliza Courtney, Emma Edwards, Michelle Bowman and 5 more

Abstract read
In one paragraph

Article in Genetics in medicine open, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Anaita Kanga-ParabiaMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Lucas MitchellGarvan Institute of Medical Research, Darlinghurst, NSW, Australia.
Renee SmythSt Vincent's Hospital Sydney, Darlinghurst, NSW, Australia.
Trisha KapoorTasmanian Clinical Genetics Service, Hobart, TAS, Australia.
Jaitika DuggalMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Amy PearnThe Gene Council, North Perth, WA, Australia.
Rachel WilliamsSchool of Clinical Medicine, University of New South Wales (UNSW) Medicine and Health, UNSW, Sydney, NSW, Australia.
Eliza CourtneySchool of Clinical Medicine, University of New South Wales (UNSW) Medicine and Health, UNSW, Sydney, NSW, Australia.
Emma EdwardsWestmead Hospital, Sydney, NSW, Australia.
Michelle BowmanWestmead Hospital, Sydney, NSW, Australia.
Mithila BelekarNottingham University Hospitals NHS Trust, City Hospital, Nottingham, United Kingdom.
2023 HGSA Workforce Surveys Steering Committee
ASGC DICE Working Group
Clara GaffMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Amy NisselleMurdoch Children's Research Institute, Melbourne, Victoria, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose: To understand diversity, inclusion, and capacity of genetic counselors (GCs) in Australasia (Australia and New Zealand). Methods: Individuals with or working toward a GC qualification in Australasia were invited to complete an online survey, between November 2022 and March 2023. Quantitative data were analyzed using descriptive statistics, 1-sample proportion Results: A total of 252 participants responded to the survey. A subset analysis of respondents residing in Australia demonstrated a lack of representation across various characteristics including sex, relationship status, caregiver status, location, country of birth, Aboriginal/Torres Strait Islander identity, language, and religion. Analysis of the full data set demonstrated that most respondents also perceived that the workforce was not representative across gender, sexual orientation, ethnicity, or disability. Respondents provided examples of existing inclusive practice. They also suggested workforce needs, such as promoting education and employment for minority communities, more visible diversity, accessible services for clients, and professional development for GCs. Using survey and reference data, we estimated approximately 346 full-time equivalent GCs working in clinical practice in Australasia. Conclusion: Our study provides a first step in illuminating GC workforce changes needed in Australasia regarding diversity, inclusion, and capacity. The survey may be of use internationally, enabling other countries to understand these issues within their jurisdiction, and supporting the international community in addressing these challenges.

Indexed as

CensusDiversityGenetic counselingInclusionWorkforce capacity

Identifiers

PMID39712954
PMCPMC11658314

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.