ArticleJournal of multidisciplinary healthcare2024
Psychometric Evaluation of the Good Death Index from Patients with Terminal Cancer's Perspectives: A Mixed-Methods Study.
Article in Journal of multidisciplinary healthcare, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Psychological and attitudinal responses to death-related education: a sequential explanatory mixed-methods study informed by terror management theory.BMC medical education · 2026Article
- Development, Validity, and Reliability of Three Instruments to Assess Holistic Care from Different Perspectives.Journal of multidisciplinary healthcare · 2025Article
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Authors and funding
5 authors.
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Abstract
Background: Patients with terminal illness often experience significant physical and mental suffering. This distress affects the patients themselves, as they endure the pain of their condition and their family members, who are affected by the patient's situation and medical decisions. Furthermore, exploring the patients' and their families' concepts of a "good death" is crucial for reflecting on the value of life and for planning treatment or care models (such as advance care planning). Therefore, understanding the issues is essential in improving palliative care and the overall quality of life. Aim: This study aimed to develop a clinical assessment tool for the self-assessment of patients with terminal cancer to determine whether they are approaching a good death. Methods: Our good death concept was developed through in-depth interviews with terminal cancer patients and qualitative analysis by experts in a research program. Three themes were analyzed: "living in dying (L)", "experiencing the existential self (E)", and "dying in living (D)." Therefore, the principal and co-principal investigators designed the primary LED Good Death Index (LED-GDI) based on three major themes and 15 subtopics of the LED Good Death concept. Results: A total of 144 participants completed the LED-GDI assessment. Cronbach's alpha for the LED-GDI was 0.854. We found that the LED-GDI allowed patients to assess whether they were approaching a good death. Conclusion: The philosophical concept of LED-GDI is particularly in line with Confucian culture in East Asia and emphasizes the importance of living well before death. Therefore, the most critical goal of clinical end-of-life care is to determine whether patients with terminal illness can achieve a good death and live until the last moment.
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