Evidence map›Paper›PMID 39712605›Full record

ArticleHealth care transitions2024

Collecting resilience points for a smooth transition to adult healthcare services: Co-creating a playful resource for Spina Bifida.

Sharon Levy, Stephanie Charlie Farley, Iona Campbell

Abstract read
In one paragraph

Article in Health care transitions, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Sharon LevyUniversity of Edinburgh, Old Medical School, Teviot Place, Doorway 1, Edinburgh EH8 9AG, Scotland, United Kingdom.
Stephanie Charlie FarleyUniversity of Edinburgh, Old Medical School, Teviot Place, Doorway 1, Edinburgh EH8 9AG, Scotland, United Kingdom.
Iona CampbellSpina Bifida Hydrocephalus Scotland, The Dan Young Building, 6 Craighalbert Way, Dullatur, Glasgow G68 0LS, Scotland, United Kingdom.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The transition of young people with a disability or a chronic health condition, from paediatric to adult-focused health and social care services, in Scotland, is known to be difficult. There is a significant body of evidence to suggest that a transition should start early, be holistic and inclusive, as well as structured to build essential capabilities and promote resilience. The nurse-led project, reported here, created a playful mechanism for meaningful interaction between young people, families and healthcare professionals. Methodology: Using participatory design as a framework to support development of a collaborative boardgame, guided ways to develop a 'sense of coherence'. The ecological framing of resilience shaped the way captured lived experience, of adults with spina bifida who transitioned to adult care, was used to support developments. Experiential learning guided the co-creation of a playful resource on a journey through transition that could be used by families as well as healthcare students and professionals. We also explored ways to enhance a 'Sense of Coherence' and build resilience through serious game design. Results: In this nurse-led project we jointly crafted and tested a transition game that is easily accessible, inclusive and sufficiently adaptable to fit different settings, communities and cultures. The open licence enables others to freely use and adapt this game so it could be further used, tested and validated.

Indexed as

Participatory DesignResilienceSerious GamesSpina BifidaTransfer of careTransition

Identifiers

PMID39712605
PMCPMC11658064

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.