Evidence map›Paper›PMID 39712588›Full record

ArticleHealth care transitions2024

Amplifying adolescent and emerging adult voices: Development of a pediatric-to-adult transition research advisory council.

Zoya Punjwani, Megan Patton, Brooke Allemang, Cassandra Chisholm, Mica Pabia, Sarah Mooney, Paul Siska, Laurel Ryan, Daniella San Martin-Feeney, Ken Pfister and 3 more

Abstract read
In one paragraph

Article in Health care transitions, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Zoya PunjwaniDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Megan PattonDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Brooke AllemangFaculty of Social Work, University of Calgary, Calgary, Canada.
Cassandra ChisholmDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Mica PabiaDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Sarah MooneyDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Paul SiskaDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Laurel RyanDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Daniella San Martin-FeeneyDepartment of Pediatrics, University of Alberta, Edmonton, Canada.
Ken PfisterDepartment of Pediatrics, University of Calgary, Calgary, Canada.
Andrew MackieStollery Children's Hospital, Edmonton, Canada.
Gina DimitropoulosFaculty of Social Work, University of Calgary, Calgary, Canada.
Susan SamuelDepartment of Pediatrics, University of Calgary, Calgary, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Adolescents and emerging adults (AEA) with chronic health conditions may face numerous challenges when undergoing the transition from pediatric to adult health care. Despite the need for engagement with AEA in health research, little is known about how researchers operationalize this engagement. In an effort to enhance transparency in the practices of patient engagement, this commentary details the process of developing a pediatric-adult transition-specific youth advisory council in Alberta: the Transition Research Advisory Council (TRAC). Objectives: We provide an overview of AEA engagement in health research and detail TRAC's recruitment and onboarding strategies. Moreover, TRAC members provided reflections on their motivations and experiences during the onboarding process. Key recommendations: This commentary provides key recommendations for AEA council development, emphasizing equity, diversity, and inclusion principles, optimizing compensation plans, adopting an iterative engagement approach, fostering capacity-building and mentorship, and promoting empowerment in decision-making.

Indexed as

Adolescents and emerging adultsPatient advisory councilPatient engagement

Identifiers

PMID39712588
PMCPMC11658288

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.