Evidence map›Paper›PMID 39712578›Full record

ArticleHealth care transitions2024

Healthcare transition readiness of families of youth with cystic fibrosis during COVID-19: A correlational multicenter analysis.

Tyra C Girdwood, Kirsten Kainz, Susan G Silva, Jennifer L Goralski, Maria E Díaz-González de Ferris, Mary R Lynn, Elisabeth P Dellon, Samya Z Nasr, Ahmet Uluer, Mark P Toles

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health care transitions, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Tyra C GirdwoodUniversity of North Carolina at Chapel Hill, School of Nursing, 120 North Medical Dr., Chapel Hill, NC 27599, USA.
Kirsten KainzUniversity of North Carolina at Chapel Hill, School of Social Work, 325 Pittsboro St Ste 3550, Chapel Hill, NC 27516, USA.
Susan G SilvaDuke University, School of Nursing, 307 Trent Dr, Durham, NC 27710, USA.
Jennifer L GoralskiUniversity of North Carolina at Chapel Hill, School of Medicine, 321 South Columbia St., Chapel Hill, NC 27514, USA.
Maria E Díaz-González de FerrisUniversity of North Carolina at Chapel Hill, School of Medicine, 321 South Columbia St., Chapel Hill, NC 27514, USA.
Mary R LynnUniversity of North Carolina at Chapel Hill, School of Nursing, 120 North Medical Dr., Chapel Hill, NC 27599, USA.
Elisabeth P DellonUniversity of North Carolina at Chapel Hill, School of Medicine, 321 South Columbia St., Chapel Hill, NC 27514, USA.
Samya Z NasrUniversity of Michigan, Michigan Medicine, 1500 E Medical Center Dr, Ann Arbor, MI 48109, USA.
Ahmet UluerHarvard Medical School, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, USA.
Mark P TolesUniversity of North Carolina at Chapel Hill, School of Nursing, 120 North Medical Dr., Chapel Hill, NC 27599, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Enhancing family readiness for the healthcare transition (HCT) to adult-focused care can help adolescents and young adults (AYA) thrive in adulthood. We aimed to explore modifiable and non-modifiable individual, family, and healthcare factors associated with HCT readiness of AYA among families of AYA with cystic fibrosis (CF) during COVID-19. Methods: A multi-site, cross-sectional design was used and an online survey was deployed among families and their AYA from three US pediatric CF centers. The STAR Results: Caregivers ( Conclusions: Families perceived similar levels of AYA readiness for adult-focused care. Caregiver resilience is an important, modifiable family-level factor for targeted interdisciplinary interventions aimed at enhancing HCT processes during COVID-19.

Indexed as

Adolescents and Young AdultsCOVID-19Cystic FibrosisHealthcare Transition ReadinessMental HealthResilience

Identifiers

PMID39712578
PMCPMC11658136

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.