ArticleInternational journal of developmental disabilities2024
Parent perspectives of children with selective mutism and co-occurring autism.
Article in International journal of developmental disabilities, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Understanding silence in adolescence and young adulthood: a mixed methods systematic review on selective mutism.European child & adolescent psychiatry · 2026Pooled it
- Describing the communication of autistic people during experiences of distress: A scoping review.Autism : the international journal of research and practice · 2026Article
- Physical Freezing in Children and Adolescents with Selective Mutism.Behavioral sciences (Basel, Switzerland) · 2026Article
- Breaking with the Criteria; Selective Mutism and its Forbidden Connection with Autism.Research on child and adolescent psychopathology · 2026Article
- Article
- The Clinical Phenotype of Early Selective Mutism and Later Autism Spectrum Disorder in Girls: A Case Series Analysis.Children (Basel, Switzerland) · 2025Article
- Parental Issues and Support Needs in Selective Mutism in Japan: A Quantitative Content Analysis.Yonago acta medica · 2024Article
- An affective assessment: incarnate biases in picture captions for autistic children.International journal of developmental disabilities · 2024Article
- From personification abuse to normal expression: emotional treatment for language disorders in schools.Frontiers in psychiatry · 2024Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Selective mutism (SM) and autism frequently co-occur together, exacerbating social communication deficits and associated anxiety. However, professionals have lacked a readiness to diagnose SM and autism together, making the need to understand parental experiences of caring for a child with SM and autism crucial. The current study utilised Interpretative Phenomenological Analysis (IPA) to explore parents' experience of caring for children with SM and autism. Semi-structured interviews were conducted with eleven mothers and one father of children aged between 5 and 18 years. All children were diagnosed with SM and had undertaken, or were currently undertaking, an autism diagnostic process. Analysis of the transcripts resulted in the following themes: Complexities from co-occurring issues; The overwhelming impact of SM; The diagnostic journey; Finding solutions and advocacy. Judgements and minimisation of symptoms from educational and healthcare systems exacerbated delays in diagnosis preventing appropriate intervention. The complexities of caring for a child with SM and autism, alongside wider misunderstandings, exacerbated parental stress, impacting the family. Parental advocacy and safe environments provided opportunities for children to better manage contextually based mutism. Improvements in identification and compassionate understanding from wider systems by involving parents as key stakeholders are essential to improve this situation.
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