ArticleInternational journal of developmental disabilities2024
Support needs of families with a child with profound intellectual and multiple disabilities.
Article in International journal of developmental disabilities, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Quality of life among individuals with profound intellectual and multiple disabilities: crossed perspectives of institutional caregivers and parents.Health and quality of life outcomes · 2025Trial
- 24-Hour movement behaviour and quality of life among Chinese caregivers of children with intellectual disabilities: a compositional analysis.Preventive medicine reports · 2026Article
- From the parents' perspective: qualitative exploration of caregiving challenges and coping strategies of children with intellectual disability.International journal of developmental disabilities · 2026Article
- Supporting Canadian families of children with disabilities: unmet needs and service gaps.Frontiers in public health · 2026Article
- Weathering the Storm: Climate-Related Weather Event Experiences of Families of Children With Medical Complexity.Child: care, health and development · 2025Article
- Development of an Online Training Course for Government Employees to Support Families With a Child With Profound Intellectual and Multiple Disabilities.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Dietitians' endeavor to contribute to the nutritional health of children and youth with intellectual disability and autism.International journal of developmental disabilities · 2025Article
- The impact of family characteristics on the level of empowerment and the level of family quality of life of parents using early childhood intervention services.International journal of developmental disabilities · 2025Article
- Health problems in children with profound intellectual and multiple disabilities: a scoping review.European journal of pediatrics · 2024Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Families with a child with profound intellectual and multiple disabilities (PIMD) have to manage the child's pervasive support needs. To ensure that families are able to manage these needs, they should be properly supported. However, knowledge about the specific support needs of these families is sparse and fragmented, nor is it known if and which needs are age-specific. To learn more about these families' support needs, 20 parents of a child with PIMD aged 3-26 years were interviewed about their family's support needs through interviews with open-ended questions. Interview transcripts were qualitatively analysed to identify support needs in five domains (child with PIMD, family, environment, services, and system). Various (age-specific) support needs were identified. The findings of this study can help health professionals and policy makers to improve the support of families with a child with PIMD by attuning the support to these families' specific needs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.