ArticleResearch involvement and engagement2024
Development of a rehabilitation programme for young adult cancer survivors using co-production.
Article in Research involvement and engagement, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- A Nurse-Led, School-Based Social and Educational Intervention for Siblings of Children With Cancer (SUPREME): Process Evaluation of Perceived Impacts.Journal of advanced nursing · 2026Article
- Developing a tool to facilitate person-centered care in a university hospital in collaboration with patients and healthcare professionals.BMC health services research · 2026Article
- Involvement of underserved 18-40 year olds living with early-onset type 2 diabetes in the M3 NIHR programme grant.Research involvement and engagement · 2025Article
- Patient Advisory Committee Engagement in a Precision Medicine-Focused Public Oncology Conference: Case Report of Lessons Learned.Journal of primary care & community healthArticle
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Authors and funding
5 authors.
Funding
Abstract
backgroundYoung adult cancer survivors, defined as individuals aged 18-39 who have completed primary curative treatment, face numerous age-specific biopsychosocial late effects that impact health-related quality of life negatively. Rehabilitation can enhance participation in life roles, work, leisure activities and health-related quality of life. However, there is a lack of age-specific cancer rehabilitation for this population, leaving many young adults with diminished self-efficacy in managing their challenges, resulting in unmet needs. This study aimed to co-produce and develop an age-specific, municipality-based cancer rehabilitation intervention programme to improve young adults' self-efficacy and health-related quality of life.
methodsThe development process was completed between September 2019 and June 2023 and followed Hawkins et al.'s three-staged framework for co-production: (1) A literature review and stakeholder consultations; (2) four workshops with 2-6 young adult cancer survivors, 3-4 professionals, and two researchers and one workshop with 20 young adult cancer survivors and two researchers to co-produce the name, component content, delivery methods and potential outcomes; and (3) Refinement of the programme and its programme theory. Key findings from each stage informed the subsequent stages.
resultsThe Young Adults Taking ACtion programme was developed. It applies a person-centred approach and is grounded in social cognitive theory and experiential learning theory. It comprises one mandatory component, a needs assessment and goal setting that tailor which of the following seven components the young adults will receive: (1) everyday life, (2) physical activity, (3) psychological issues, (4) education and work, (5) sexuality and relationships, (6) funds and grants, and (7) family and friends. The programme is primarily group-based and will be delivered by an interdisciplinary team over 16 weeks.
conclusionsWe co-produced a comprehensive, goal-oriented, and peer-based rehabilitation programme for young adult cancer survivors. The engagement of young adults and professionals ensured that the programme aligned with the population's needs and preferences and was context specific. Thus, it is likely that the programme will be more realistic and feasible to implement in clinical practice.
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