Evidence map›Paper›PMID 39705676›Full record

ArticleJMIR perioperative medicine2024

Parental Perspectives on Pediatric Surgical Recovery: Narrative Analysis of Free-Text Comments From a Postoperative Survey.

Jessica Luo, Nicholas C West, Samantha Pang, Julie M Robillard, Patricia Page, Neil K Chadha, Heng Gan, Lynnie R Correll, Randa Ridgway, Natasha Broemling and 2 more

Registry-linked trialAbstract read
In one paragraph

Article in JMIR perioperative medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07095244 (Pediatric Outcomes and Recovery With Peri-Operative Iron Supplement Evaluation), which is not on this map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07095244 narecruitingnot on this mapstarted 2025, after this paper: background citation

Pediatric Outcomes and Recovery With Peri-Operative Iron Supplement Evaluation (PORPOISE)

TypeinterventionalSponsorUniversity of British ColumbiaRan2025 to 2027Enrolled180ConditionsVarus-Derotation Osteotomy Surgery, Iron-deficiency Anemia, Pelvic Osteotomy Surgery, Cerebral PalsyArmsIron Supplement, Comprehensive Nutrition Management
3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Jessica LuoResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0009-0004-2953-5305
Nicholas C WestResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0001-8382-5136
Samantha PangResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-6775-2632
Julie M RobillardDivision of Neurology, Department of Medicine, The University of British Columbia, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0001-5765-4927
Patricia PageBC Children's and Women's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0001-6570-1631
Neil K ChadhaResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-1417-2175
Heng GanResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0003-2894-9114
Lynnie R CorrellResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0001-8128-0152
Randa RidgwayResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0002-1226-5327
Natasha BroemlingDepartment of Anesthesia, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0003-2761-4232
Matthias GörgesResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.ORCID https://orcid.org/0000-0003-2193-178X
Pediatric Pain Prediction CollaborationResearch Institute, BC Children's Hospital, Vancouver, BC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundQualitative experience data can inform health care providers how to best support families during pediatric postoperative recovery. Patient experience data can also provide actionable information to guide health care quality improvement; positive feedback can confirm the efficacy of current practices and systems, while negative comments can identify areas for improvement.

objectiveThis study aimed to understand families' perspectives regarding their children's surgical recovery using qualitative patient experience data (free-text comments) from a prospective cohort study conducted within a larger study developing a postoperative-outcome risk stratification model.

methodsParticipants were parents or guardians of children aged 0-18 years who underwent surgery at a pediatric tertiary care facility; children undergoing either outpatient or inpatient procedures were eligible to be enrolled. Participants with English as a second language were offered translational services during the consent process and were included if any family member could translate the surveys into their preferred language. Participants were ineligible if they and their families could not understand English or the child had a neurodevelopmental disability. Perioperative data were collected from families using web-based surveys, including 1 preoperative survey and follow-up surveys sent on postoperative days 1, 2, 3, 7, 15, 30, and 90. Surveys were completed until the family indicated the child was fully recovered or until postoperative day 90 was reached. Follow-up surveys included opportunities to leave free-text comments on the child's surgical experience.

resultsIn total, 91% (453/500) of enrolled families completed at least 1 postoperative survey; 53% (242/453) provided at least 1 free-text comment and were included in the presented analysis, based on a total of 485 comments. The patient's age distribution was bimodal (modes at 2-3 and 14-15 years), with 66% (160/242) being male. Patients underwent orthopedic (60/242, 25%), urological (39/242, 16%), general (36/242,15%), otolaryngological (31/242, 13%), ophthalmological (32/242, 13%), dental (27/242, 11%), and plastic (17/242, 7%) surgeries. Largely positive comments (398/485, 82%) were made on the recovery and clinical care experience. A key theme for improvement included "communication," with subthemes highlighting parental concerns regarding the "preoperative discussions," "clarity of discharge instructions," and "continuity of care." Other themes included "length of stay" and "recovery experience." Feedback also suggested survey design amendments for future iterations of this instrument.

conclusionsCollecting parental recovery feedback is feasible and valued by families. Findings underscored the significance of enhancing communication strategies between health care providers and parents to align expectations and support proactive family-centered care. Our postoperative surveys allowed families to provide actionable suggestions for improving their experience, which may not have been considered during their hospital encounter. Our longitudinal survey protocol may be expanded to support continuous quality improvement initiatives involving near-real-time patient feedback to improve the health care experience of patients and families.

Indexed as

family feedbacknarrative analysisnarrative feedbackpain managementpediatric surgeryperioperative carequalitative datasurgical recovery

Identifiers

PMID39705676
PMCPMC11699487

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.