ArticleBMC nursing2024
Experiences of burden and needs in caregivers with pediatric noninfectious uveitis: a qualitative study.
Article in BMC nursing, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Revealing relationships: The role of self-disclosure and marital intimacy in the post-traumatic growth of cervical cancer patients-A qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- A qualitative study of the family caregiver burden for caregivers of children with congenital cataracts from a social ecosystem theory perspective.BMC nursing · 2025Article
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Authors and funding
8 authors.
Funding
Abstract
backgroundLong-term, potentially lifelong therapy is needed to treat noninfectious uveitis (NIU) in children. Previous research has focused primarily on treatment approaches, but few studies have investigated the effect of children's chronic illness on other family members. The aim of this study is to explore the experiences of burden and needs in caregivers of children with NIU, and to provide a reference for formulating targeted intervention strategies.
methodsA total of 11 caregivers of children with NIU were recruited from a tertiary-level eye hospital in Wenzhou Province, China. For data collection, semi-structured interviews were conducted. Data analysis was conducted using Colaizzi's seven-step analysis method. Themes were encoded and created with NVivo 14.0 for Mac software.
resultsBased on the Social Ecosystem Theory, three major themes and ten subthemes emerged from the analysis: (1) Micro system - Caregiver distress and growth coexist (subthemes: Affected physical health, difficulties in the child's health management, emotional well-being, psychological Adjustment and Growth); (2) Mezzo system - Changes in family lifestyle (subthemes: Family financial challenges, family management dilemmas, weakened family socialization); (3) Macro system - Weak support system (subthemes: Insufficient information support, limited medical support conditions, lack of social understanding and support).
conclusionsThe social-ecological systems of caregivers for children with NIU present numerous difficulties impacting their caregiving experiences. It is imperative for healthcare providers to address the psychosocial issues faced by caregivers and to develop family-centered intervention strategies and support systems, enabling them to cope effectively and overcome challenges.
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