Evidence map›Paper›PMID 39698996›Full record

ArticleInternational journal of technology assessment in health care2024

Stakeholder perspectives on the current status and potential barriers of patient involvement in health technology assessment (HTA) across Europe.

Anke-Peggy Holtorf, Neil Bertelsen, Hannes Jarke, Maria Dutarte, Silvia Scalabrini, Valentina Strammiello

Abstract read
In one paragraph

Article in International journal of technology assessment in health care, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Two decades of impact: lessons from the HTAi Patient and Citizen Involvement in HTA Interest Group.International journal of technology assessment in health care · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Anke-Peggy HoltorfHealth Outcomes Strategies GmbH, Basel, Switzerland.ORCID https://orcid.org/0000-0002-4638-5351
Neil BertelsenPatient and Citizen Involvement in HTA Interest Group, Steering Committee, Health Technology Assessment international (HTAi), Edmonton, AB, Canada.
Hannes JarkeEuropean Patients' Forum (EPF), Brussels, Belgium.
Maria DutarteThe European Patients' Academy on Therapeutic Innovation (EUPATI), Utrecht, The Netherlands.
Silvia ScalabriniThe European Patients' Academy on Therapeutic Innovation (EUPATI), Utrecht, The Netherlands.
Valentina StrammielloEuropean Patients' Forum (EPF), Brussels, Belgium.

Funding

Health Technology Assessment international
6 · The paper itself

Abstract

backgroundThere are wide variations in the practices of patient involvement in health technology assessment (HTA) in Europe. The field is lacking a consensus on good practices, leading to divergent processes, methods, and evaluation of patient involvement. To identify potential good practice approaches and current gaps, a structured online survey was conducted among HTA stakeholders, including HTA practitioners, patient stakeholders, industry representatives, and others who had experienced patient involvement in HTA.

methodsThe questionnaire was co-created by HTA experts, patient stakeholders, and industry representatives and disseminated between 29 April and 14 September 2022.

resultsResponses (n = 168) were submitted from thirty-two European countries by HTA practitioners (n = 33), patient stakeholders (n = 75), industry stakeholders (n = 42), providers (n = 5), academics (n = 7), and others (n = 6). The responses indicated that "

conclusionsThe diverse stakeholders who responded highlighted the need for improving specific aspects of patient involvement practices, including better guidance and information, a more consistent flow of communication between the HTA body and participating patient stakeholders, and the need to develop and implement a consensus on good practices.

Indexed as

Patient ParticipationTechnology Assessment, BiomedicalEuropeHumansStakeholder ParticipationSurveys and QuestionnairesEuropehealth services accessibilityhealth technology assessmentpatient participationsurveys and questionnaires

Identifiers

PMID39698996
PMCPMC11703633

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.