Evidence map›Paper›PMID 39696839›Full record

SynthesisAutism : the international journal of research and practice2025

A systematic review of ecological momentary assessment in autism research.

Yixin Chen, Zhenyang Xi, Talya Greene, Will Mandy

Abstract readSystematic Review
In one paragraph

Synthesis in Autism : the international journal of research and practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
  7. Review
  8. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Yixin ChenUniversity College London, London, UK.ORCID 0009-0002-7166-1116
Zhenyang XiUniversity College London, London, UK.ORCID 0000-0001-7672-7183
Talya GreeneUniversity College London, London, UK.
Will MandyUniversity College London, London, UK.ORCID 0000-0002-3564-5808

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Ecological momentary assessment has been increasingly used in autism studies over the last decade to capture and understand autistic people's behaviours, thoughts, feelings and daily experiences. This systematic review synthesised previous autism ecological momentary assessment studies to learn about the feasibility of ecological momentary assessment with autistic people and derive ideas to optimise the applicability of ecological momentary assessment in autism studies. Five databases (MEDLINE, PsycINFO, Web of Science, EMBASE and CINAHL) were searched, covering the time between January 1990 and October 2024, for studies using ecological momentary assessment with autistic participants. We identified 32 studies with 930 autistic participants. These studies supported the acceptability and feasibility of ecological momentary assessment with young and middle-aged autistic adults with average or above-average intelligence and language skills. Previous researchers and autistic participants in the reviewed literature suggested considering adaptations in the design of sampling schedules, ecological momentary assessment questionnaires and the implementation of incentive strategies, to improve the applicability of ecological momentary assessment with the autistic population. Future ecological momentary assessment studies could address the limitations in the extant literature, for example, lack of evidence from youth and older autistic people and a wider range of study topics.Lay abstractEcological momentary assessments assess people's in-the-moment thoughts and behaviours in their daily lives in natural environments. The number of ecological momentary assessment studies with autistic people has increased over the last decade. For the first time, this review (1) summarises how well ecological momentary assessment works for allowing autistic people to describe and express their thoughts, emotions and experiences, and (2) provides suggestions for the design of ecological momentary assessment to make this research method more accessible to future autistic participants. In total, we synthesised participation experiences from 930 autistic people. Overall, ecological momentary assessment is generally acceptable for autistic adults aged from 18 to 60 and with average or above-average intelligence and language. We also identified several issues in the ecological momentary assessment procedure and suggested researchers consider these when designing future ecological momentary assessment studies with autistic people. The findings of this review provide evidence that ecological momentary assessment can be used to investigate many different questions with autistic people and suggest a wider application of ecological momentary assessment in future studies with autistic people.

Indexed as

Autistic DisorderEcological Momentary AssessmentAdultHumansautism spectrum disordersecological momentary assessmentexperience sampling methodsystematic review

Identifiers

PMID39696839
PMCPMC12089685

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.