Evidence map›Paper›PMID 39696497›Full record

ArticleResearch involvement and engagement2024

Engaging Red River Métis families in Manitoba in the development of child health resources - findings from a qualitative study.

Lisa Knisley, S Michelle Driedger, Lisa Hartling, Frances Chartrand, Julianne Sanguins, Shannon D Scott

Abstract read
In one paragraph

Article in Research involvement and engagement, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Lisa KnisleyChildren's Hospital Research Institute of Manitoba, Winnipeg, Canada.
S Michelle DriedgerRady Faculty of Health Science, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
Lisa HartlingAlberta Research Centre for Health Evidence, Department of Pediatrics, University of Alberta, Edmonton, AB, Canada.
Frances ChartrandManitoba Métis Federation, Winnipeg, Canada.
Julianne SanguinsRady Faculty of Health Science, Department of Community Health Sciences, University of Manitoba, Winnipeg, Canada.
Shannon D ScottFaculty of Nursing, University of Alberta, Edmonton, Canada. shannon.scott@ualberta.ca.

Funding

Canada Research Chair in Knowledge Synthesis and Translation N/ACanada Research Chair in Knowledge Translation in child health 231687Distinguished Researchers, Stollery Science Lab, Stollery Children's Hospital Foundation 2677Manitoba Métis Federation N/AStrategy for Patient Orientated Research (SPOR) Evidence Alliance N/A
6 · The paper itself

Abstract

backgroundMost research that includes Red River Métis tends to be pan-Indigenous. Grouping Métis with First Nations and Inuit can diminish their unique and diverse experiences, as well as distinctions-based approaches. Taking a step toward addressing this problem, the Manitoba Métis Federation (MMF; the national government of the Red River Métis) invited researchers within the Canadian network Translating Emergency Knowledge for Kids to partner in this research, which focuses on understanding engagement strategies that can help expose Red River Métis parents to child health research opportunities and build trust and transparency amongst research partners and participants.

methodsA qualitative descriptive approach underpinned by a participatory paradigm guided this study. Semi-structured interviews were conducted with 19 Red River Métis parents and Elders via Zoom or telephone. An inductive thematic analysis approach was used to explore patterns and themes across the data.

resultsAnalysis generated four themes: (a) show me why you are here; (b) make it easier for me to take part; (c) create welcoming spaces; and (d) it should be a give and take experience. Parents emphasized the importance of kinship and personal connections, and said they want to hear about child health study opportunities from trusted organizations. They want researchers to be transparent about their research motivations and to offer multiple ways to participate to help them fit research into their busy lives. Relational approaches within the research process (e.g., creating informal/welcoming environments, gathering over food, fostering shared learning/creative opportunities) are prominent in the findings.

conclusionThere is a dearth of research focused on the distinct experiences of Red River Métis families. Engaging Red River Métis parents early in the research process will help incorporate their preferences and perspectives into the design of a larger project to adapt child health resources. More training is needed to help researchers improve their abilities to engage in self-reflection, listen, recognize power relationships, and demonstrate trust and transparency in each research interaction. It is only through respectful and successful engagement that child health research can be relevant, applicable and positively impact Red River Métis children, families and communities.

Indexed as

Child healthIndigenousKnowledge translationMétisPatient and public involvementPediatricsQualitativeRed River MétisResearch engagement

Identifiers

PMID39696497
PMCPMC11653692

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.