Evidence map›Paper›PMID 39696068›Full record

ArticleBMC cancer2024

Exploring the supportive care needs of families affected by pancreatic cancer: a mixed-methods study protocol.

Tara Anderson, Gillian Prue, Lisa Graham-Wisener, Susan McLaughlin, Gary Mitchell

Abstract read
In one paragraph

Article in BMC cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Tara AndersonSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, UK. tanderson11@qub.ac.uk.
Gillian PrueSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, UK.
Lisa Graham-WisenerSchool of Psychology, Queen's University Belfast, Belfast, UK.
Susan McLaughlinNorthern Ireland Pancreatic Cancer, Belfast, UK.
Gary MitchellSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPancreatic cancer is an aggressive disease with most cases diagnosed at an advanced stage resulting in low survival rates. Family members often take on a role of supporting patients' needs. Families tend to be unprepared for this and experience high levels of unmet needs and substantial impacts to their own wellbeing, heightened by the rapid deterioration and short life expectancy associated with pancreatic cancer.

aimThe proposed study aims to explore the supportive care needs and associated psychosocial impact of pancreatic cancer on family members, and the role of support services in supporting these families.

methodsA sequential explanatory mixed methods design will be utilised. Data collection will consist of three phases: (1) Survey of affected family members to explore their supportive care needs and psychological wellbeing; (2) Semi-structured interviews to explore the lived experiences of family members across the disease trajectory, their psychosocial adjustment, and their perceptions of support services; (3) Focus groups with support services providers to explore their experiences in providing support to affected families. DISCUSSION: By combining quantitative and qualitative approaches, this research aims to provide a comprehensive understanding of the challenges and opportunities in providing psychosocial support to families affected by pancreatic cancer, ultimately enhancing their quality of life during and after the cancer journey. The findings may help to inform the development and enhancement of support programs, tailored to meet the specific needs of affected families.

Indexed as

FamilyPancreatic NeoplasmsQuality of LifeSocial SupportAdaptation, PsychologicalCaregiversFemaleFocus GroupsHealth Services Needs and DemandHumansMaleNeeds AssessmentQualitative ResearchSurveys and QuestionnairesCaregiversFamilyPancreatic CancerPsychosocialQuality of LifeSupportive Care NeedsWellbeing

Identifiers

PMID39696068
PMCPMC11656576

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.