Evidence map›Paper›PMID 39695685›Full record

ArticlePediatric rheumatology online journal2024

Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals.

Nihal Şahin, Gülcan Özomay Baykal, Ceyhun Açarı, Pinar Özge Avar Aydın, Özge Baba, Esra Bağlan, Sevcan Bakkaloğlu, Sibel Bakırcı, Yelda Bilginer, Burcu Yücel Bozkaya and 38 more

Abstract readConsensus Statement
In one paragraph

Article in Pediatric rheumatology online journal, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

48 authors.

Nihal ŞahinDepartment of Pediatric Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey. nihal_sahin41@hotmail.com.ORCID http://orcid.org/0000-0002-2122-6952
Gülcan Özomay BaykalDepartment of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.
Ceyhun AçarıDepartment of Pediatric Rheumatology, Faculty of Medicine, İnönü University, Malatya, Turkey.
Pinar Özge Avar AydınDepartment of Pediatric Rheumatology, Tekirdağ State Hospital, Tekirdağ, Turkey.
Özge BabaDepartment of Pediatric Rheumatology, Karadeniz Technical University Faculty of Medicine, Trabzon, Turkey.
Esra BağlanDepartment of Pediatric Rheumatology, Etlik State Hospital, Ankara, Turkey.
Sevcan BakkaloğluDepartment of Pediatric Rheumatology, Faculty of Medicine, Gazi University, Ankara, Turkey.
Sibel BakırcıDepartment of Rheumatology, Antalya State Hospital, Antalya, Turkey.
Yelda BilginerDepartment of Pediatric Rheumatology, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Burcu Yücel BozkayaDepartment of Pediatric Rheumatology, Samsun Research and Training Hospital, Samsun, Turkey.
Şengül ÇağlayanDepartment of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.
Mustafa ÇakanDepartment of Pediatric Rheumatology, Zeynep Kamil Research and Training Hospital, Istanbul, Turkey.
Figen ÇakmakDepartment of Pediatric Rheumatology, Başakşehir Çam and Sakura State Hospital, Istanbul, Turkey.
Taner CoşkunerDepartment of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.
Ferhat DemirDepartment of Pediatric Rheumatology, Acıbadem Hospital, İstanbul, Turkey.
Fatma Gül DemirkanDepartment of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.
Şeyda DoğantanDepartment of Pediatric Rheumatology, Mersin City Hospital, Mersin, Turkey.
Hatice Adıgüzel DündarDepartment of Pediatric Rheumatology, Behçet Uz Research and Training Hospital, Izmir, Turkey.
Emine Duygu ErsözlüDepartment of Rheumatology, Adana City Research and Training Hospital, Adana, Turkey.
Sercan GücenmezDepartment of Rheumatology, Izmir Atatürk Research and Training Hospital, Izmir, Turkey.
Oğuz GürlerDepartment of Rheumatology, Medikal Park Hospital, Samsun, Turkey.
Rana İşgüderDepartment of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University, Izmir, Turkey.
Adem KüçükDepartment of Rheumatology, Faculty of Medicine, Konya Selçuk University, Konya, Turkey.
Mukaddes KalyoncuDepartment of Pediatric Rheumatology, Karadeniz Technical University Faculty of Medicine, Trabzon, Turkey.
Levent KılıçDepartment of Rheumatology, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Sara Şebnem KılıçDepartment of Pediatric Rheumatology, Faculty of Medicine, Uludağ University, Bursa, Turkey.
Hakan KısaoğluDepartment of Pediatric Rheumatology, Kayseri City Hospital, Kayseri, Turkey.
Ayşenur Paç KısaarslanDepartment of Pediatric Rheumatology, Faculty of Medicine, Erciyes University, Kayseri, Turkey.
Zehra KızıldağDepartment of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University, Izmir, Turkey.
Duygu KurtuluşDepartment of Physical Therapy and Rehabilitation, Umraniye Training and Research Hospital, Istanbul, Turkey.
Semanur ÖzdelDepartment of Pediatric Rheumatology, Etlik State Hospital, Ankara, Turkey.
Kübra ÖztürkDepartment of Pediatric Rheumatology, Göztepe Research and Training Hospital, Istanbul, Turkey.
Pelin ŞenolDepartment of Pediatric Rheumatology, Faculty of Medicine, Gazi University, Ankara, Turkey.
Ayşe TanatarDepartment of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.
Sema Nur TaşkınDepartment of Pediatric Rheumatology, Eskişehir City Hospital, Eskişehir, Turkey.
Fatma Tuncer KuruDepartment of Rheumatology, Osmaniye State Hospital, Osmaniye, Turkey.
Serkan TürkuçarDepartment of Pediatric Rheumatology, Faculty of Medicine, Pamukkale University, Denizli, Turkey.
Kadir UluDepartment of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.
Erbil ÜnsalDepartment of Pediatric Rheumatology, Faculty of Medicine, Dokuz Eylül University, Izmir, Turkey.
Ayten YazıcıDepartment of Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey.
Ayşe CefleDepartment of Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey.
Deniz Gezgin YıldırımDepartment of Pediatric Rheumatology, Faculty of Medicine, Gazi University, Ankara, Turkey.
Selçuk YükselDepartment of Pediatric Rheumatology, Faculty of Medicine, Onsekiz Mart University, Çanakkele, Turkey.
Özgür KasapçopurDepartment of Pediatric Rheumatology, Istanbul University-Cerrahpaşa, Cerrahpaşa Medical School, Istanbul, Turkey.
Seza ÖzenDepartment of Pediatric Rheumatology, Faculty of Medicine, Hacettepe University, Ankara, Turkey.
Nuray Aktay AyazDepartment of Pediatric Rheumatology, Istanbul Faculty of Medicine, Istanbul University, Istanbul, Turkey.
Hafize Emine SönmezDepartment of Pediatric Rheumatology, Faculty of Medicine, Kocaeli University, Kocaeli, Turkey.
Betül SözeriDepartment of Pediatric Rheumatology, University of Health Sciences, Ümraniye Research and Training Hospital, Istanbul, Turkey.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe field of transitional care for chronic conditions in adolescents, notably juvenile idiopathic arthritis (JIA), is rapidly growing. Transitioning these patients to adult healthcare systems presents significant challenges in practical implementation. Consequently, it would be appropriate for each country to develop a transition program tailored to its specific infrastructure. To pursue this goal, a Delphi study was conducted to identify the key components of transitional care in JIA.

methodsThree panels and two rounds were held consisting of adolescents and young adults, parents, and clinicians (pediatric or adult rheumatologists). As a result, feedback on acceptance of the key statements of transitional care was obtained using the Delphi method.

resultsOut of 102 contacted, 88 (86.3%) participants responded to the Round 1 survey, which included 48 clinicians, 20 youths, and 20 parents. In Round 2, the number of clinicians dropped to 29, while the number of youths and parents remained constant. Based on expert opinions, 29 statements were selected for the first round. Statements that received ≥ 70% approval in the first round advanced to the next round. Sixteen statements did not achieve ≥ 70% approval. Of the remaining, 12 were reviewed in the second round, while four were excluded.

conclusionAlthough consensus has been reached on the basic transitional care issues for JIA patients, several issues still need to be agreed upon. Acceptance and applicability of the final 20-item checklist in clinical practice are critical for advancing JIA transition care in Turkey.

Indexed as

Arthritis, JuvenileCaregiversDelphi TechniqueTransition to Adult CareAdolescentAdultFemaleHealth PersonnelHumansMaleParentsYoung AdultAdolescentArthritisChronic diseaseDelphi-studyJuvenileTransition to adult care

Identifiers

PMID39695685
PMCPMC11654283

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.