Evidence map›Paper›PMID 39693573›Full record

ArticleJMIR aging2024

Development and Usability of an Advance Care Planning Website (My Voice) to Empower Patients With Heart Failure and Their Caregivers: Mixed Methods Study.

Chetna Malhotra, Alethea Yee, Chandrika Ramakrishnan, Sanam Naraindas Kaurani, Ivy Chua, Joshua R Lakin, David Sim, Iswaree Balakrishnan, Vera Goh Jin Ling, Huang Weiliang and 2 more

Abstract read
In one paragraph

Article in JMIR aging, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Chetna MalhotraLien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore, 65 65165692, 65 62217372.ORCID 0000-0002-5380-0525
Alethea YeeLien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore, 65 65165692, 65 62217372.ORCID 0000-0001-6787-5811
Chandrika RamakrishnanLien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore, 65 65165692, 65 62217372.ORCID 0009-0002-4623-0357
Sanam Naraindas KauraniLien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore, 65 65165692, 65 62217372.ORCID 0009-0005-9090-4429
Ivy ChuaLien Centre for Palliative Care, Duke-NUS Medical School, 8 College Road, Singapore, 169857, Singapore, 65 65165692, 65 62217372.ORCID 0009-0008-8564-541X
Joshua R LakinPsychosocial Oncology and Palliative Care, Dana Faber Cancer Institute, Boston, MA, United States.ORCID 0000-0002-7659-6512
David SimDepartment of Cardiology, National Heart Centre Singapore, Singapore, Singapore.ORCID 0000-0002-5136-9460
Iswaree BalakrishnanDepartment of Cardiology, Sengkang General Hospital, Singapore, Singapore.ORCID 0000-0002-1339-434X
Vera Goh Jin LingDepartment of Internal Medicine, Singapore General Hospital, Singapore, Singapore.ORCID 0000-0001-5260-6280
Huang WeiliangDepartment of Cardiology, Changi General Hospital, Singapore, Singapore.ORCID 0000-0002-0702-0771
Lee Fong LingDepartment of Cardiology, Khoo Teck Phuat Hospital, Singapore, Singapore.ORCID 0009-0005-5203-4303
Kathryn I PollakCancer Prevention and Control, Duke Cancer Institute, Durham, NC, United States.ORCID 0000-0002-5559-2416

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Web-based advance care planning (ACP) interventions offer a promising solution to improve ACP engagement, but none are specifically designed to meet the needs of patients with heart failure and their caregivers. Objective: We aimed to develop and assess the usability and acceptability of a web-based ACP decision aid called "My Voice," which is tailored for patients with heart failure and their caregivers. Methods: This study's team and advisory board codeveloped the content for both patient and caregiver modules in "My Voice." Using a mixed methods approach, we iteratively tested usability and acceptability, incorporating feedback from patients, caregivers, and health care professionals (HCPs). Results: We interviewed 30 participants (11 patients, 9 caregivers, and 10 HCPs). Participants found the website easy to navigate, with simple and clear content facilitating communication of patients' values and goals. They also appreciated that it allowed them to revisit their care goals periodically. The average System Usability Scale score was 74 (SD 14.8; range: 42.5-95), indicating good usability. Over 80% (8/11) of patients and 87% (7/8) of caregivers rated the website's acceptability as good or excellent. Additionally, 70% (7/10) of HCPs strongly agreed or agreed with 11 of the 15 items testing the website's acceptability. Conclusions: "My Voice" shows promise as a tool for patients with heart failure to initiate and revisit ACP conversations with HCPs and caregivers. We will evaluate its efficacy in improving patient and caregiver outcomes in a randomized controlled trial.

Indexed as

Advance Care PlanningCaregiversHeart FailureInternetAdultAgedAged, 80 and overFemaleHumansMaleMiddle AgedPatient Participationacceptabilityadvance care planningcaregivercare plandecision aidheartheart failureusabilitywebsite

Identifiers

PMID39693573
PMCPMC11669373

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.