Evidence map›Paper›PMID 39690308›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2025

Content and face validity of preference-based quality of life instruments in indigenous youth experiencing mental health problems: a qualitative study.

Thao Thai, Lidia Engel, Sandra Eades, Lena Sanci, Robyn William, Pippa Gregory, Justine Whitby, Cathrine Mihalopoulos

Abstract readValidation Study
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Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

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0cells of the map it votes in
2citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Adaptation of the Good Spirit, Good Life quality of life tool for remote Indigenous Australians.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Thao ThaiMonash University Health Economics Group, School of Public Health and Preventive Medicine, Monash University, Level 4, 553 St Kilda Road, Melbourne, VIC, 3004, Australia. thao.thai@monash.edu.ORCID http://orcid.org/0000-0002-0995-7509
Lidia EngelMonash University Health Economics Group, School of Public Health and Preventive Medicine, Monash University, Level 4, 553 St Kilda Road, Melbourne, VIC, 3004, Australia.ORCID https://orcid.org/0000-0002-7959-3149
Sandra EadesFaculty of Medicine, Dentistry and Health Sciences, Centre for Epidemiology and Biostatistics, School of Population and Global Health, The University of Melbourne, 780 Elizabeth Street, Melbourne, VIC, 3000, Australia.ORCID https://orcid.org/0000-0001-8629-3390
Lena SanciDepartment of General Practice, Faculty of Medicine, Melbourne Medical School, The University of Melbourne, Dentistry & Health Sciences780 Elizabeth Street, Melbourne, VIC, 3000, Australia.ORCID https://orcid.org/0000-0003-4834-4737
Robyn WilliamFaculty of Health Sciences, Curtin University, Perth, WA, Australia.
Pippa GregoryFaculty of Medicine, Dentistry and Health Sciences, Centre for Epidemiology and Biostatistics, School of Population and Global Health, The University of Melbourne, 780 Elizabeth Street, Melbourne, VIC, 3000, Australia.
Justine WhitbyFaculty of Medicine, Dentistry and Health Sciences, Centre for Epidemiology and Biostatistics, School of Population and Global Health, The University of Melbourne, 780 Elizabeth Street, Melbourne, VIC, 3000, Australia.
Cathrine MihalopoulosMonash University Health Economics Group, School of Public Health and Preventive Medicine, Monash University, Level 4, 553 St Kilda Road, Melbourne, VIC, 3004, Australia.ORCID https://orcid.org/0000-0002-7127-9462

Funding

Australian Government GNT 1179461 2019-2023
6 · The paper itself

Abstract

backgroundMainstream preference-based quality of life (QoL) measures have been traditionally based on Western principles of health. It is critical to examine whether existing preference-based QoL measures capture what is important to Indigenous people while being comprehensive and culturally acceptable. This study aims to assess the content and face validity of the EuroQol-5 dimensions 5-levels (EQ-5D-5 L), 12-item short form survey (SF-12), assessment of quality of life-6 dimensions (AQoL-6D), and recovering quality of life 10-item (ReQoL-10) within the context of indigenous youth mental health.

methodsEight individual yarns and five yarning circles were conducted with 20 indigenous young people aged 15-25 years, with a history of at least 1 mental health problem in the Perth and Bunbury regions of Western Australia. The measures were explored in random order using the yarning approach, and then ranked by relevance by participants. Data were analysed using thematic and constant comparative approaches.

resultsThe face and content validity of each preference-based QoL instrument was summarised into four themes: (1) appropriateness, (2) comprehensiveness, (3) comprehensibility, and (4) layout and format. The ReQoL-10 emerged as a more suitable measure due to its mental health focus, clear response options, and well-designed layout and format. While some positive comments were made about the other measures, there were critical issues around their content and face validity. Our data revealed a clear preference for the ReQoL.

conclusionThe ReQoL-10 appears to be a promising measure in the context of indigenous youth mental health, and was explicitly preferred by indigenous youth.

Indexed as

Mental DisordersQuality of LifeAdolescentAdultFemaleHumansMaleMental HealthPsychometricsQualitative ResearchReproducibility of ResultsSurveys and QuestionnairesWestern AustraliaYoung AdultHealth-related quality of lifeIndigenousMental healthQualitativeValidity

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.