Evidence map›Paper›PMID 39687843›Full record

ArticleInnovation in aging2024

Representing the Needs of Rural Caregivers of People Living With Alzheimer's Disease and Related Dementias Through User Personas.

Anna Jolliff, Jordan R Hill, Matthew Zuraw, Christian Elliott, Nicole E Werner

Abstract read
In one paragraph

Article in Innovation in aging, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Anna JolliffDepartment of Health & Wellness Design, Indiana University School of Public Health, Bloomington, Indiana, USA.ORCID https://orcid.org/0000-0002-5099-1469
Jordan R HillDepartment of Health & Wellness Design, Indiana University School of Public Health, Bloomington, Indiana, USA.ORCID https://orcid.org/0000-0001-6677-9465
Matthew ZurawCareVirtue Technologies, San Diego, California, USA.
Christian ElliottCareVirtue Technologies, San Diego, California, USA.
Nicole E WernerDepartment of Health & Wellness Design, Indiana University School of Public Health, Bloomington, Indiana, USA.

Funding

Alzheimer's Family Connection: A Novel Online Community and Personalized Resource Connection for Rural ADRD CaregiversR43AG080849 · NIA · WHIPLASH TECHNOLOGY, INC. · PI ELLIOTT, CHRISTIAN, WERNER, NICOLE E · 2022 to 2022
$500k
NIA NIH HHS R43 AG080849
6 · The paper itself

Abstract

Background and Objectives: Rural caregivers of people living with Alzheimer's disease and related dementias (ADRD) face unique caregiving challenges. Current interventions do not address many of the systemic barriers experienced by rural ADRD caregivers, including barriers related to geography, healthcare services access, and financial insecurity. The objective of this study was to gain a deeper understanding of rural ADRD caregivers' needs, strengths, and strategies in obtaining caregiving support, and to represent these attributes in the form of personas that can be used to design interventions for rural ADRD caregivers. Research Design and Methods: In this qualitative user-centered design study, we conducted semistructured interviews with self-identified caregivers of people living with ADRD in rural areas. Interview data was copied to a virtual whiteboard, and affinity diagramming was used to confirm a priori attributes and yield inductive attributes relevant to rural ADRD caregivers. Attributes were assigned to personas, which were then validated through team-based discussion, consultation with a study advisory board, and review by rural caregivers and community partners. Results: Analyses of Discussion and Implications: The personas identified in the present study can be used as tools to represent and efficiently communicate the intersection and interaction of attributes relevant to designing interventions and technologies to meet the support needs of rural ADRD caregivers.

Indexed as

Alzheimer’s diseaseCaregiving—informalRural samplingTechnology

Identifiers

PMID39687843
PMCPMC11648308

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.