Evidence map›Paper›PMID 39683421›Full record

ArticleNutrients2024

Using Participatory Narrative Inquiry to Assess Experiences and Self-Experimentation with Diet Interventions in Inflammatory Bowel Disease Patients.

Celine Hos, Merel Tebbens, Tjitske Bezema, Jos A Bosch, Aletta D Kraneveld, Corinne E G M Spooren, Marie Claire de Haas, Pieter C F Stokkers, Marjolijn Duijvestein, Gerd Bouma and 1 more

Abstract read
In one paragraph

Article in Nutrients, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Incorporating Real-World Variability in Clinical IBD Research.Journal of evaluation in clinical practice · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Celine HosTytgat Institute for Liver and Intestinal Research, Amsterdam UMC, University of Amsterdam, Meibergdreef 69-71, 1105 BK Amsterdam, The Netherlands.
Merel TebbensTytgat Institute for Liver and Intestinal Research, Amsterdam UMC, University of Amsterdam, Meibergdreef 69-71, 1105 BK Amsterdam, The Netherlands.
Tjitske BezemaImmunowell Foundation, 3947 NZ Langbroek, The Netherlands.
Jos A BoschDepartment of Psychology, University of Amsterdam, 1018 WS Amsterdam, The Netherlands.
Aletta D KraneveldDivision of Pharmacology, Department of Pharmaceutical Sciences Utrecht Institute for Pharmaceutical Sciences, Utrecht University, 3584 CG Utrecht, The Netherlands.
Corinne E G M SpoorenDepartment of Internal Medicine, School of Nutrition and Translational Research in Metabolism (NUTRIM), Maastricht University, 6200 MD Maastricht, The Netherlands.ORCID 0000-0003-2575-8400
Marie Claire de HaasImmunowell Foundation, 3947 NZ Langbroek, The Netherlands.
Pieter C F StokkersDepartment of Gastroenterology and Hepatology, OLVG West, 1061 AE Amsterdam, The Netherlands.
Marjolijn DuijvesteinDepartment of Gastroenterology, Radboud University Medical Center, 6525 GA Nijmegen, The Netherlands.
Gerd BoumaDepartment of Gastroenterology and Hepatology, Amsterdam UMC, University of Amsterdam, 1081 HV Amsterdam, The Netherlands.
Anje A Te VeldeTytgat Institute for Liver and Intestinal Research, Amsterdam UMC, University of Amsterdam, Meibergdreef 69-71, 1105 BK Amsterdam, The Netherlands.

Funding

Dutch Digestive Diseases Foundation ZP 18-07
6 · The paper itself

Abstract

BACKGROUND AND

aimsTo improve quality of life (QoL), patients with inflammatory bowel diseases (Crohn's disease and ulcerative colitis) often self-experiment with lifestyle changes such as dietary modifications. The nature (e.g., type of interventions, expectations, perceived efficacy) of these single-subject experiments has not been systematically investigated.

methodWe used Participatory Narrative Inquiry (PNI), a structured qualitative method, to obtain information about these experiments through patient stories.

resultsWe demonstrate that PNI can be a method to collect and analyze IBD patient ideas and experiences regarding lifestyle and nutritional factors in a structured manner to reveal valuable insights for personal and scientific follow-up research. Patients report rest, (psychological) balance, and a change in diet when describing times when they experienced a better QoL. When focusing on diet, patients reported a considerable number of food products that were experienced as beneficial by one person but detrimental by another.

conclusionsPNI is a suitable method to obtain information about self-experimentation. An insight that was attained was that personalized (dietary) guidance that supports the individual is needed.

Indexed as

Inflammatory Bowel DiseasesNarrationQuality of LifeAdultAgedColitis, UlcerativeCrohn DiseaseDietFemaleHumansLife StyleMaleMiddle AgedQualitative Researchdietinflammatory bowel diseaselifestylequality of lifeself-experimentation

Identifiers

PMID39683421
PMCPMC11643754

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.