Evidence map›Paper›PMID 39677983›Full record

ArticleJournal of patient experience2024

Mixed Methods Analysis of Caregiver Satisfaction With the Early Autism Evaluation Hub System.

Ann Marie Martin, Jordan Huskins, Angela Paxton, Amira Nafiseh, Mary R Ciccarelli, Brandon Keehn, Rebecca McNally Keehn

Abstract read
In one paragraph

Article in Journal of patient experience, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Ann Marie MartinDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.ORCID https://orcid.org/0000-0002-1705-2275
Jordan HuskinsDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.
Angela PaxtonDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.
Amira NafisehDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.
Mary R CiccarelliDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.
Brandon KeehnDepartment of Speech, Language, and Hearing Sciences, Purdue University, West Lafayette, IN, USA.
Rebecca McNally KeehnDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.

Funding

Quality Assurance and Quality Control Project Management: Improving Submissions and Study Conduct in the Human Subjects Research Prior Approval ProcessUL1TR002529 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI MOE, SHARON M, WIEHE, SARAH ELIZABETH · 2018 to 2022
$27.2M
CTSA K12 Program at Indiana UniversityK12TR004415 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI SAMIR KUMAR GUPTA · 2023 to 2026
$3.4M
An innovative model of early ASD diagnosis in the primary care setting: Integrating clinical evaluation and biomarkers to improve diagnostic accuracyR21MH121747 · NIMH · INDIANA UNIVERSITY INDIANAPOLIS · PI KEEHN, BRANDON, MCNALLY KEEHN, REBECCA · 2020 to 2020
$435k
NCATS NIH HHS K12 TR004415NCATS NIH HHS UL1 TR002529NIMH NIH HHS R21 MH121747
6 · The paper itself

Abstract

Community-based methods for autism evaluation may be one solution for ameliorating delays in diagnosis, which are exacerbated for children from minoritized backgrounds. However, limited research has examined caregiver satisfaction with community-based models of autism evaluation. Thus, our objective was to use a mixed-methods approach to investigate caregiver satisfaction with their child's autism evaluation conducted across a statewide system of primary care autism diagnosis. Results indicated overall high satisfaction and no significant differences were found between satisfaction total scores nor caregiver stress and any child/family demographic variables. Satisfaction and stress were also not related to autism diagnostic outcome, clinician diagnostic certainty, or diagnostic accuracy. Qualitative suggestions for evaluation improvement include more thorough explanation of diagnosis and service recommendations. Overall, our findings indicate high caregiver satisfaction with multiple dimensions of community-based autism evaluation in the primary care setting, suggesting this may be a feasible and sustainable model that caregivers find acceptable.

Indexed as

autismcaregiver stressdevelopmental delayprimary caresatisfactionscreening

Identifiers

PMID39677983
PMCPMC11638985

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.