Evidence map›Paper›PMID 39676139›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2024

Cancer prognosis information-seeking among survivors and caregivers: findings from the National Cancer Institute's Cancer Information Service.

Ashley Wilson, Grace Huang, George Kueppers, Laura A Dwyer, Paul K J Han, Robin C Vanderpool

Abstract read
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In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Preguntas Sobre Cáncer (Questions About Cancer): Analysis of Spanish Inquiries to the National Cancer Institute's Cancer Information Service.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Ashley WilsonWestat, Rockville, MD, USA.
Grace HuangWestat, Rockville, MD, USA.ORCID http://orcid.org/0000-0002-8512-3848
George KueppersBehavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, MD, USA.ORCID http://orcid.org/0000-0001-8874-8037
Laura A DwyerCape Fox Facilities Services, Chantilly, VA, USA.ORCID http://orcid.org/0000-0003-3324-563X
Paul K J HanBehavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, MD, USA.ORCID http://orcid.org/0000-0003-0165-1940
Robin C VanderpoolBehavioral Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Rockville, MD, USA. robin.vanderpool@nih.gov.ORCID http://orcid.org/0000-0001-9995-4485

Funding

NCI NIH HHS HHSN261201800002BNCI NIH HHS HHSN261201800002CNIH HHS NIH Scientific, Operations and Administrative Resources (SOAR) Contract
6 · The paper itself

Abstract

purposeReceiving prognostic information is a well-documented need for cancer survivors and caregivers. However, little is known about these two groups' prognosis information-seeking outside of discussions with healthcare providers. This study examined survivors' and caregivers' prognosis-related inquiries using data from the National Cancer Institute's Cancer Information Service (CIS).

methodsUsing an analytic sample of 81,154 survivors and caregivers, descriptive statistics explored differences between prognosis and non-prognosis inquiries made by each group over a 6-year period (September 2018-August 2024). Logistic regressions identified factors that were associated with odds of a prognosis inquiry among both cancer survivors and caregivers.

resultsA higher proportion of caregivers (62%) made prognosis inquiries to the CIS compared to survivors (38%). Among both groups, telephone and instant chat were commonly used to contact the CIS with prognosis questions. Prognosis inquiries were more likely among survivors and caregivers who contacted the CIS in Spanish and whose inquiries centered on staging, post-treatment, or end-of-life phases of the cancer continuum. For both groups, prognosis inquiries were more likely to occur in the context of discussions about chemotherapy and general questions about cancer treatment. Discussion of prognosis as related to specific cancer sites was variable across survivors and caregivers.

conclusionFindings may inform the development and targeting of messages to support cancer prognosis information-seeking among survivors and caregivers. Disseminating accessible, language-concordant prognostic information that accounts for survivors' and caregivers' respective information-seeking needs is merited. Efforts may contribute to enhancing prognostic understanding, supporting discussions with providers, and improving psychosocial outcomes.

Indexed as

Cancer SurvivorsCaregiversInformation Seeking BehaviorNational Cancer Institute (U.S.)NeoplasmsAdultAgedFemaleHumansInformation ServicesLogistic ModelsMaleMiddle AgedPrognosisUnited StatesCancer survivorsCaregiversHealth information-seekingPrognosis

Identifiers

PMID39676139
PMCPMC11646954

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.