ArticleJournal of the European Academy of Dermatology and Venereology : JEADV2025
Oral health care pathways for patients with epidermolysis bullosa: A position statement from the European reference network for rare skin diseases.
Article in Journal of the European Academy of Dermatology and Venereology : JEADV, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
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Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Orthodontic Treatment in Patients With Epidermolysis Bullosa (EB)-Clinical Practice Guidelines (CPG).Special care in dentistry : official publication of the American Association of Hospital Dentists, the Academy of Dentistry for the Handicapped, and the American Society for Geriatric DentistryGuideline
- Dentofacial Characteristics in Patients With Epidermolysis Bullosa-A Cross-Sectional Study.Clinical and experimental dental research · 2026Article
- Barriers, Benefits and Complications of Orthodontic Treatment in Patients with Epidermolysis Bullosa: A Patient-Reported Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2026Article
- European Reference Networks - a flagship activity of the EU in the field of rare and complex diseases: from 2017 to 2025.Orphanet journal of rare diseases · 2026Review
- Oral status and dental treatment needs in patients with Epidermolysis Bullosa - a cross-sectional study.Clinical oral investigations · 2026Article
- Article
- Oral health status, treatment needs and oral health-related quality of life in patients with epidermolysis bullosa in Austria: a mixed-methods pilot study.Frontiers in oral health · 2026Article
- An International Online Survey on Oral Hygiene Issues in Patients with Epidermolysis Bullosa.Dentistry journal · 2025Article
- Gene expression and molecular pathway analyses differentiate immunotherapy-induced myositis from spontaneous dermatomyositis.Scientific reports · 2025Article
- Oral health care pathways for patients with epidermolysis bullosa: A position statement from the European reference network for rare skin diseases.Journal of the European Academy of Dermatology and Venereology : JEADV · 2025Article
Corrections and comments
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Authors and funding
20 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInherited epidermolysis bullosa (EB) comprises a group of genetic disorders characterized by skin fragility and unique oral features. It requires interdisciplinary care from several health professionals, including oral health teams. Modern dentistry encompasses a wide range of therapeutic options performed by specialists from different fields.
objectiveTo guide clinicians caring for patients with different types of EB to seek care from different dental services.
methodsDental treatment needs for patients with EB were identified based on a systematic literature review. A panel of experts was consulted and invited to provide additional information through an open-ended question over 7 months. A Delphi study was applied over two rounds to the resulting pathways design. The threshold of consensus was set a priori at 75%. Patients' representatives revised the final document.
resultsThe panel (n = 17) agreed on a total of 55 recommendations divided into six groups according to the severity of oral compromise in EB (52 recommendations were agreed on in round 1, and three were agreed on in round 2).
conclusionsDental care pathways are presented for each type of EB. Specific considerations are discussed according to clinical features, including age of first referral, frequency of follow-up appointments, and list of dental specialties involved in the care of patients with EB.
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