Evidence map›Paper›PMID 39661743›Full record

ArticleThe journal of spinal cord medicine2026

Evolution of the Veterans Health Administration Spinal Cord Injuries and Disorders (SCI/D) Registry (VHA SCIDR): Characterization from 1994 to 2022.

Jennifer L Sippel, Rafer Willenberg, Charlesnika T Evans, Zhiping Huo, Gabriel Escudero, Kevin T Stroupe, Adam Eberhart, Stephen P Burns, Belinda Frazier, I Manosha Wickremasinghe and 1 more

Abstract read
In one paragraph

Article in The journal of spinal cord medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
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  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Jennifer L SippelVeterans Health Administration, United States Department of Veterans Affairs, Spinal Cord Injuries & Disorders National Program Office (11SCID), Washington, District of Columbia, USA.ORCID 0000-0001-6549-4847
Rafer WillenbergSpinal Cord Injury Service, VA Boston Healthcare System, Boston, MA, USA.ORCID 0000-0001-7533-5727
Charlesnika T EvansCenter of Innovation for Complex Chronic Healthcare (CINCCH), Edward Hines Junior Veterans Affairs Hospital, Hines, Illinois, USA.ORCID 0000-0002-0696-8288
Zhiping HuoCenter of Innovation for Complex Chronic Healthcare (CINCCH), Edward Hines Junior Veterans Affairs Hospital, Hines, Illinois, USA.ORCID 0000-0002-5652-9726
Gabriel EscuderoCenter of Innovation for Complex Chronic Healthcare (CINCCH), Edward Hines Junior Veterans Affairs Hospital, Hines, Illinois, USA.ORCID 0000-0002-7721-1151
Kevin T StroupeCenter of Innovation for Complex Chronic Healthcare (CINCCH), Edward Hines Junior Veterans Affairs Hospital, Hines, Illinois, USA.ORCID 0000-0001-9735-4929
Adam EberhartVeterans Health Administration, United States Department of Veterans Affairs, Spinal Cord Injuries & Disorders National Program Office (11SCID), Washington, District of Columbia, USA.
Stephen P BurnsSpinal Cord Injury Service, VA Puget Sound Health Care System, Seattle, WA, USA.ORCID 0000-0003-4714-5111
Belinda FrazierVeterans Health Administration, United States Department of Veterans Affairs, Spinal Cord Injuries & Disorders National Program Office (11SCID), Washington, District of Columbia, USA.
I Manosha WickremasingheVeterans Health Administration, United States Department of Veterans Affairs, Spinal Cord Injuries & Disorders National Program Office (11SCID), Washington, District of Columbia, USA.ORCID 0000-0003-3464-2928
Bridget M SmithVeterans Health Administration, United States Department of Veterans Affairs, Spinal Cord Injuries & Disorders National Program Office (11SCID), Washington, District of Columbia, USA.ORCID 0000-0002-3301-8843

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

contextVeterans Health Administration (VHA) maintained a registry of identified and verified cases of US Veterans with spinal cord injuries and disorders (SCI/D) since 1994: VHA SCI/D Registry (VHA SCIDR). Data elements, capture, and storage methods varied over time.

objectiveDescribe the consolidation and harmonization of historical VHA SCIDR data spanning three decades during its evolution to an automated platform and report population characteristics.

methodsThe VHA SCIDR captured data using four distinct acquisition methods over 28 years, including cases of Veterans with SCI/D receiving SCI/D System of Care services, via 25 SCI/D Centers and 122 Spoke Sites throughout the VHA healthcare system. Foundational elements of VHA SCIDR data capture methods, harmonization of data elements with the current automated algorithm, access protocol, and governance structure are described.

resultsFrom Fiscal Years (FYs) 1994 to 2022, VHA SCIDR identified 52,407 Veterans with traumatic or non-traumatic SCI/D, and 96.95% were male, 56.09% White, 16.57% were Black, 1.23% Asian and Pacific Islander, 0.75% Native American, and 25.36% unknown. Traumatic etiology comprised 53.39% of the sample, while 31.75% were non-traumatic, with 14.87% missing etiology classification. Injury category proportions were 5.19% high tetraplegia, 5.83% low tetraplegia, 5.85% high paraplegia, 7.53% low paraplegia, and 23.35% AIS D, with 52.25% missing or unable to be calculated.

conclusionsVHA SCIDR is one of the three largest SCI/D registries in North America and is the case-identification platform for VHA SCI/D operations, program evaluation, and research studies. VHA SCIDR is connected to each Veteran's VHA healthcare data, facilitating big data research.

Indexed as

RegistriesSpinal Cord DiseasesSpinal Cord InjuriesUnited States Department of Veterans AffairsAdultAgedFemaleHumansMaleMiddle AgedUnited StatesVeteransPopulation healthRegistriesSpinal cord injuriesUnited StatesVeterans

Identifiers

PMID39661743
PMCPMC12944817

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.