Evidence map›Paper›PMID 39655584›Full record

ArticleSarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG2024

Online survey on existing sarcoidosis registries and biobanks: an ERN lung initiative.

Miriana D'alessandro, Tommaso Pianigiani, Laura Bergantini, Paolo Cameli, Elena Bargagli, Elisabetta Balestro, Eda Börner, Francesco Bonella

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Bone involvement in sarcoidosis: Insights from a multicentre Italian cohort.Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG · 2026
    Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Miriana D'alessandroRespiratory Diseases and Lung Transplantation Unit, Department of Medical and Surgical Sciences & Neurosciences, University of Siena, Siena, Italy.
Tommaso PianigianiRespiratory Diseases and Lung Transplantation Unit, Department of Medical and Surgical Sciences & Neurosciences, University of Siena, Siena, Italy.
Laura BergantiniRespiratory Diseases and Lung Transplantation Unit, Department of Medical and Surgical Sciences & Neurosciences, University of Siena, Siena, Italy.
Paolo CameliRespiratory Diseases and Lung Transplantation Unit, Department of Medical and Surgical Sciences & Neurosciences, University of Siena, Siena, Italy.
Elena BargagliRespiratory Diseases and Lung Transplantation Unit, Department of Medical and Surgical Sciences & Neurosciences, University of Siena, Siena, Italy.
Elisabetta BalestroDepartment of Cardiac, Thoracic, Vascular Sciences and Public Health, University of Padova, Padova, Italy.
Eda BörnerCenter for interstitial and rare lung diseases, Pneumology Department, Ruhrlandklinik University Hospital, University of Duisburg-Essen, Essen, Germany.
Francesco BonellaCenter for interstitial and rare lung diseases, Pneumology Department, Ruhrlandklinik University Hospital, University of Duisburg-Essen, Essen, Germany.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The present survey, promoted by the European Reference Network on rare respiratory diseases (ERN-Lung, Core Networks Sarcoidosis and ILD), aims to assess the existing sarcoidosis registries and biobanks across Europe and to compare the various types of biospecimen collected, the different procedures performed, and the sample storage conditions applied. This survey was initiated by the European Reference Network on rare respiratory diseases (ERN-Lung) Core Network "Sarcoidosis" in April 2023. The survey was launched by ERN-Lung Core Network "Sarcoidosis" in August 2023 and remained active until end of February 2024. It was disseminated to all ERN-Lung Core Network "Sarcoidosis" members (first round) and to "ILD" CN members (second round) via mail. Consent to completing the questionnaire was expressly requested before starting the online procedure.  This survey raises important questions about future developments. The creation of registries and biobanks specific for sarcoidosis is mandatory to improve the knowledge of sarcoidosis pathogenesis and its management. This survey shows that the map of registries and biobanks specific for sarcoidosis in Europe is fragmented and needs merging, funding and coordination to allow high quality and structured research in sarcoidosis.

Identifiers

PMID39655584
PMCPMC11708944

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.