Evidence map›Paper›PMID 39655567›Full record

ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2025

Advance care planning in adults ages 80 years and older with impaired cognition: Using actual conversations to examine best practices.

Martha Abshire Saylor, Valecia Hanna, Peiyuan Zhang, Glory Huynh Thai, Chase Mulholland Green, John G Cagle, Jennifer L Wolff

Abstract read
In one paragraph

Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Martha Abshire SaylorJohns Hopkins School of Nursing, Baltimore, Maryland, USA.ORCID 0000-0003-1824-1542
Valecia HannaJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Peiyuan ZhangUniversity of Maryland School of Social Work, Baltimore, Maryland, USA.
Glory Huynh ThaiCase Western Reserve University School of Medicine, Cleveland, Ohio, USA.
Chase Mulholland GreenJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
John G CagleUniversity of Maryland School of Social Work, Baltimore, Maryland, USA.
Jennifer L WolffJohns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.

Funding

The Johns Hopkins Clinical Research Scholars in Women's Health (BIRCWH)K12HD085845 · NICHD · JOHNS HOPKINS UNIVERSITY · PI FORD, DANIEL ERNEST · 2015 to 2023
$4.5M
Involving Family to Improve Advance Care Planning for Primary Care Patients with ADRDR01AG058671 · NIA · JOHNS HOPKINS UNIVERSITY · PI WOLFF, JENNIFER L. · 2019 to 2023
$3.8M
K12 BIRCWH K12HD085845NIA NIH HHS R01 AG058671NIA NIH HHS R01AG058671NICHD NIH HHS K12 HD085845
6 · The paper itself

Abstract

introductionRecommendations for advance care planning (ACP) in persons with cognitive impairment are based on expert input without insight from actual ACP conversations.

methodsWe used thematic analysis to analyze transcripts of ACP conversations for 88 older adults with normal cognition (n = 15), mild cognitive impairment (n = 13), and scores consistent with dementia (n = 60).

resultsPatients with dementia were least verbally active; however, some shared values and identified surrogates. We identified three themes: (1) cognitive impairment inhibits participation in ACP, but individuals with dementia are able to contribute; (2) care partners have a key role in supporting ACP across the spectrum of cognitive impairment; and (3) structured questions about values and tailored communication strategies can facilitate engagement of older adults with dementia. DISCUSSION: Our findings reinforce best practice recommendations for early ACP and identify strategies to increase patient engagement among older adults with cognitive impairment with support of care partners. HIGHLIGHTS: Data from actual ACP conversations involving older adults with a range of cognitive function and their care partners reinforce best practice recommendations and suggest practical implications for education and training. Family involvement in ACP was valued by older adults and improved engagement. ACP initiatives should prioritize eliciting values of older adults with dementia and improving skills for communication to increase engagement.

Indexed as

Advance Care PlanningCognitive DysfunctionCommunicationDementiaAged, 80 and overFemaleHumansMaleadvance care planningcare partnerscognitive impairmentdementia

Identifiers

PMID39655567
PMCPMC11772722

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.