Evidence map›Paper›PMID 39655443›Full record

ArticleCancer medicine2024

"You First Have to Check Out the Doctors": Transition Expectations and Experiences of Survivors After Pediatric Cancer.

Ekaterina Aleshchenko, Thorsten Langer, Gabriele Calaminus, Juliane Glogner, Henrike Haugke, Pietro Trocchi, Enno Swart, Katja Baust

Abstract read
In one paragraph

Article in Cancer medicine, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Ekaterina AleshchenkoInstitute of Social Medicine and Health Systems Research, Faculty of Medicine, Otto von Guericke University, Magdeburg, Germany.ORCID 0000-0001-6338-5014
Thorsten LangerUniversity Hospital of Schleswig-Holstein, Campus Luebeck, Luebeck, Germany.
Gabriele CalaminusDepartment of Pediatric Hematology and Oncology, University Hospital Bonn, Bonn, Germany.
Juliane GlognerDepartment of Pediatric Hematology and Oncology, University Hospital Bonn, Bonn, Germany.
Henrike HaugkeDepartment of Pediatric Hematology and Oncology, University Hospital Bonn, Bonn, Germany.
Pietro TrocchiInstitute of Social Medicine and Health Systems Research, Faculty of Medicine, Otto von Guericke University, Magdeburg, Germany.
Enno SwartInstitute of Social Medicine and Health Systems Research, Faculty of Medicine, Otto von Guericke University, Magdeburg, Germany.
Katja BaustDepartment of Pediatric Hematology and Oncology, University Hospital Bonn, Bonn, Germany.

Funding

Federal Joint Committee (G-BA) Innovation Fund in Germany 01VSF19013
6 · The paper itself

Abstract

purposeThe shift from child-centered to adult-focused healthcare presents social and psychological challenges for adolescents and young adults with chronic conditions, which can affect their participation in follow-up care. This study aims to investigate the factors that influence patient-driven motivations for adhering to follow-up recommendations, while also exploring the barriers and supports that impact the transition process for pediatric cancer survivors.

methodsWe developed interview guidelines grounded in the Theory of Planned Behavior (TPB) and the stereotype priming model (SPM). We conducted 10 episodic narrative interviews with pediatric cancer survivors during their transition phase. The interview transcripts were analyzed through qualitative thematic content analysis, followed by quantitative analysis using multiple regression models. This research is a part of the broader VersKiK study, which aims to propose enhancements to the organization of (long-term) follow-up care after cancer in childhood and adolescence in Germany.

resultsIn this study, pediatric cancer survivors transitioning to adult healthcare showed varied motivations for follow-up care. Positive attitudes, driven by understanding the benefits, improved engagement, while anxiety and fear of losing familiar care created barriers. Family and peer support played a key role in encouraging adherence. Perceived control over healthcare management, supported by organizational help, was crucial, but logistical and financial challenges often undermined this control.

conclusionsSeveral motives underlying pediatric cancer survivors' behavior significantly influence their transition experiences. Enhancing positive attitudes, strengthening social support, and improving perceived control through targeted interventions may support smoother transitions to adult healthcare facilities.

trial registrationRegistered at German Clinical Trial Register (IDs: DRKS00025960 and DRKS00026092).

Indexed as

Cancer SurvivorsMotivationNeoplasmsAdolescentAdultChildFemaleGermanyHumansMaleQualitative ResearchTransition to Adult CareYoung Adultcancer survivorshippediatric cancerstereotype priming modeltheory of planned behaviortransition from pediatric to adult healthcare

Identifiers

PMID39655443
PMCPMC11629024

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.