ArticleJournal of the Royal Society of New Zealand2025
Identifying strategic research priorities of stakeholders for fetal alcohol spectrum disorder in Aotearoa.
Article in Journal of the Royal Society of New Zealand, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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1 citing paper in PubMed.
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Authors and funding
7 authors.
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Abstract
Fetal alcohol spectrum disorder (FASD) is under-researched in Aotearoa New Zealand (NZ). There is a pressing need to establish a research agenda that is aligned with Te Tiriti o Waitangi and relevant to both stakeholders and end-users, to improve the outcomes and support for people affected by FASD. We conducted hui and interviews to identify consensus on research priorities among key stakeholders for FASD in NZ, including whānau and caregivers, health care workers, educators, academics and clinicians. The hui focused on three main topics: prevention; assessment and diagnosis; and intervention. Hui transcripts were analysed to identify priorities. Once the research questions or priorities were identified we sent a follow-up survey to participants asking them to rate each research question on their importance and relevance. Four hui and ten interviews (
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