Evidence map›Paper›PMID 39648510›Full record

ArticleInternational journal of aging & human development2025

Communicative and Methodological Challenges Related to Collecting Data with Older Adults with Dementia in Senior Living Communities During the COVID-19 Pandemic.

Tamara D Afifi, Charles E Burnham, Nancy Collins, Chloe Gonzales, Aria Ma, Allison Mazur, Erin E Naffziger, Kyle Rand, Yuval Rosen, Abdullah Salehuddin and 3 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of aging & human development, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Tamara D AfifiDepartment of Communication, University of California Santa Barbara, Santa Barbara, CA, USA.ORCID 0000-0003-4582-8760
Charles E BurnhamRendever, 66-70 Union Square, Third Floor, Somerville, MA, USA.
Nancy CollinsDepartment of Psychological and Brain Sciences, University of California Santa Barbara, Santa Barbara, CA, USA.
Chloe GonzalesDepartment of Communication, University of California Santa Barbara, Santa Barbara, CA, USA.
Aria MaRendever, 66-70 Union Square, Third Floor, Somerville, MA, USA.
Allison MazurKinsey Institute, Bloomington, IN, USA.
Erin E NaffzigerRendever, 66-70 Union Square, Third Floor, Somerville, MA, USA.
Kyle RandRendever, 66-70 Union Square, Third Floor, Somerville, MA, USA.
Yuval RosenRendever, 66-70 Union Square, Third Floor, Somerville, MA, USA.
Abdullah SalehuddinDepartment of Communication and Information Sciences, Tuscaloosa, AL, USA.
Jennifer StampsRendever, 66-70 Union Square, Third Floor, Somerville, MA, USA.
Nikki TruscelliDepartment of Communication, Central Oregon Community College, Bend, Oregon, USA.
Veronica WilsonDepartment of Communication, University of California Santa Barbara, Santa Barbara, CA, USA.

Funding

Using Rendever to improve the quality of life of older adults with cognitive impairments in senior living communities and their family members who live at a distance.R42AG063640 · NIA · RENDEVER, INC. · PI AFIFI, TAMARA DAWN, COLLINS, NANCY LEE · 2021 to 2023
$2.2M
NIA NIH HHS R42 AG063640
6 · The paper itself

Abstract

The COVID-19 pandemic presented significant challenges to researchers collecting data with older adults, particularly older adults with Alzheimer's disease and related dementias (ADRD). The goal of this article is to articulate the communicative and methodological challenges and lessons learned from collecting data with older adults in senior living communities with mild cognitive impairment and ADRD and their adult children (who were geographically separated) during the pandemic. Communication was much more than what we were studying; it was essential to the success and ethical implementation of our research. We were working with a vulnerable population during a pandemic where recruitment, consent, and data collection required heightened and adapted communication strategies to reduce confusion, promote safety, and ensure data could be collected in an effective manner. The way we communicated with the participants, their networks, and the senior living communities was crucial to establishing strong human connections and subsequently successful data collection.

Indexed as

Alzheimer DiseaseCommunicationCOVID-19Data CollectionDementiaAgedAged, 80 and overCognitive DysfunctionFemaleHumansIndependent LivingMalePandemicsSARS-CoV-2ADRDCOVID-19dementiafamily membersvirtual realityzoom

Identifiers

PMID39648510
PMCPMC12149450

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.